Prohobo
Member
- Joined
- Mar 9, 2015
- Messages
- 18
- Reason
- Loved one DX
- Diagnosis
- 03/2015
- Country
- US
- State
- FL
- City
- Sarasota
I can't help but feeling guilty - massively so.
We were so late in finding the diagnosis - even after 3 neurologist. It progressed so fast and I was blinded to anything serious.
As it progressed quickly I was foiled at every turn: Took time to get certain meds, time to get a peg tube, time to get certain items for therapy, I felt like everything moved slowly - far to slow.
I have learned to hate HIPAA, government, and general bureaucracy. Those that rose to the occasion and quickly were private donors, foundations, volunteers, and the private sector not hampered by idiocracy.
Most of my time was trying to slash and cut through red tape, god forbid I EMAIL any records to a doctor (everything has to be in paper and fax - thanks HIPPA and government).
If I ever had an inkling for supporting socialized medicine - it has ended completely. I feel guilty that I couldn't cut through quick enough, get my mother what she needed now, or even some clinical trial stuff (which required more red tape and paperwork). Everyone is afraid of law suits and the regulations are so lengthy that any more I would be buried.
Thankfully there were those who rose to the occasion and some that even said "f###" the government rules - let's get your mother what she needs NOW!
I tried to move my grandmother from assisted living to a closer facility to spend the last few days with her daughter (my mother) - on no - that can't happen, we need the 1823 form and a TB test. A state/government form that usually takes 20 minutes to fill out and a Dr. signature, took over 10 days - my mother passed. However, ironically I got it today - the same day they get to bill my grandmother another $5k for her assisted living.
What a way to use government red tape to further line their pockets - slow the process down and charge MORE.
I am venting because I am tired of dealing with paper work, lawyers, social workers, HIPAA, and host of issues that have done nothing but slow everything down and increase price.
Unbelievable...seriously....
We have the best doctors, hospitals, medical facilities, and treatments in the world - our system is not broken, what IS broken is the suffocating laws, rules, regulations, paper work, and government interventionism.
Yeah - it is worse elsewhere, but the idoicracy si that our nation has some of the best - it is just the paperwork, laws, and regulations that don't work. I have a horrible feeling Obamacare is only going to add to the headache of government interventionism.
All I know as that I am stuck with huge bills and my personal insurance prices have tripled since 2010. I also can't use my own doctor :-( - he is no longer in my network.
Sorry for the rant...my mother has passed and now I look at the paper trail mess left behind and the wasted time dealing with it.
I seriously should have easily gamed the system and got my mother on Medicaid - would have been far cheaper and easier. Sucks being honest and paying everyone else's way.
We were so late in finding the diagnosis - even after 3 neurologist. It progressed so fast and I was blinded to anything serious.
As it progressed quickly I was foiled at every turn: Took time to get certain meds, time to get a peg tube, time to get certain items for therapy, I felt like everything moved slowly - far to slow.
I have learned to hate HIPAA, government, and general bureaucracy. Those that rose to the occasion and quickly were private donors, foundations, volunteers, and the private sector not hampered by idiocracy.
Most of my time was trying to slash and cut through red tape, god forbid I EMAIL any records to a doctor (everything has to be in paper and fax - thanks HIPPA and government).
If I ever had an inkling for supporting socialized medicine - it has ended completely. I feel guilty that I couldn't cut through quick enough, get my mother what she needed now, or even some clinical trial stuff (which required more red tape and paperwork). Everyone is afraid of law suits and the regulations are so lengthy that any more I would be buried.
Thankfully there were those who rose to the occasion and some that even said "f###" the government rules - let's get your mother what she needs NOW!
I tried to move my grandmother from assisted living to a closer facility to spend the last few days with her daughter (my mother) - on no - that can't happen, we need the 1823 form and a TB test. A state/government form that usually takes 20 minutes to fill out and a Dr. signature, took over 10 days - my mother passed. However, ironically I got it today - the same day they get to bill my grandmother another $5k for her assisted living.
What a way to use government red tape to further line their pockets - slow the process down and charge MORE.
I am venting because I am tired of dealing with paper work, lawyers, social workers, HIPAA, and host of issues that have done nothing but slow everything down and increase price.
Unbelievable...seriously....
We have the best doctors, hospitals, medical facilities, and treatments in the world - our system is not broken, what IS broken is the suffocating laws, rules, regulations, paper work, and government interventionism.
Yeah - it is worse elsewhere, but the idoicracy si that our nation has some of the best - it is just the paperwork, laws, and regulations that don't work. I have a horrible feeling Obamacare is only going to add to the headache of government interventionism.
All I know as that I am stuck with huge bills and my personal insurance prices have tripled since 2010. I also can't use my own doctor :-( - he is no longer in my network.
Sorry for the rant...my mother has passed and now I look at the paper trail mess left behind and the wasted time dealing with it.
I seriously should have easily gamed the system and got my mother on Medicaid - would have been far cheaper and easier. Sucks being honest and paying everyone else's way.
