Very sorry to have to welcome you here Ram.
As has been posted already, you can't really beat ALS/MND. There is no cure, but there are strategies for coping with it.
One of the things that seems to go along with MND is a lack of stamina. I found that starting to use a wheelchair early dramatically preserved my energy so that I could spend my limited energy doing things that are important to me.
Watch your breathing and get some quantitative measurements of your pulmonary function early on (with a Pulmonary Function Test (PFT)). I think it is important to track your decline in breathing so you know when to start considering a bipap. It is also important to get a feeding tube before your breathing becomes too weak to tolerate the procedure. So, having quantitative measures of your breathing are useful for making those kinds of decisions.
For me, an important part of "overcoming" MND is to accept that it is a terminal illness. This is a hard thing to accept. But, once I accepted it, I was able to start trying to live each day to its fullest. Some days I can't do much. But on days that I can do a few things, I do them.
You will probably lose your ability to eat, so eat your favorite foods while you still can!
Watch your weight. Fight to keep your weight up.
Bank your voice while you still can (I used Model Talker). You can find a few threads on that topic with the search function.
Spend time with friends and family. I have found that things are much less important now. Relationships are priceless.
Sorry to welcome you here, but welcome nonetheless. This forum has some amazing people.
Steve
