I’m so scared. Could this be the start of ALS?

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shsksjs

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Just about a week ago, I noticed sudden numbness and tingling in my hand and foot, balance problems, blurry vision, etc., and thought I was having a stroke. I got a CT scan done that came back normal. Was diagnosed with paresthesia.

Well, the tingling/numbness got better, but a few days later, I started noticing difficulty swallowing or a lump in my throat. I can still swallow without choking; it just always feels like there’s something there.

Not too long after, my feet, calves, thighs, the back of my knees, and sometimes my butt, back, stomach, and arms will even twitch. It’s nonstop. It literally doesn’t go away. It’s driving me crazy. I’ve tried hydrating more and drinking Gatorade for electrolytes, but they just won’t stop. This all happened within a week and a half.

My doctor assessed my reflexes and didn’t notice any clinical weakness, but I’ve heard that a lot of people’s symptoms first start with twitching. I’m terrified.

I also sometimes have uncontrollable yawning, but I don’t know if it’s because of my anxiety or not. Sometimes it’s harder for me to breathe when lying on my back.

I’m only 24 and have already suffered from extreme health anxiety for a while now. I’ve been under a LOT of stress this past month, like at the hospital almost every day kind of stressed.

This twitching and lump feeling in my throat has driven me insane. I’ve been sleeping nonstop, barely eat anything anymore, haven’t showered or brushed my teeth, etc.

I’m so convinced it’s ALS and can’t help but cry and cry, thinking I might only have a few months left.

I’ve suffered from depression since I was a child and have often said I don’t want to live long. Maybe this is my fault.

I know having no clinical weakness is a good sign, but if I try to balance directly on my heels with my toes raised, I fall backwards. I don’t know if that’s normal or not. It’s also hard for me to keep my balance on my tippy toes for a long time. Not sure if that counts or not, but it made me even more scared.

Hearing people say they started with widespread twitching has scared the crap out of me. I don’t know what to do.

Does this sound like something I should be worried about?

If the twitching doesn’t go away soon, I’m going to request to see a neurologist. I’m just catastrophizing really badly right now and can’t think of anything else.

Also, my mom’s uncle either had MS or ALS. I’m not sure but would have to confirm with another family member. That terrifies me even more.
 
Hello, please read here, as it answers your questions: Read Before Posting.

Twitching absent clinical weakness, sensory issues, issues that come and go or improve point away from ALS. The above link explains the difference between clinical weakness (seen in ALS) and feeling weak are two different things. You do not report clinical weakness.

If your anxiety is controlling your day to day activities, it is time to address that while you work with your doctors to untangle your physical symptoms. Anxiety can muddy the waters and make things more difficult to find physical causes for symptoms if left unchecked.

Take care
 
Contrary to what you think you have read, widespread twitching argues against, not for ALS, which I see no reason to think you have.

As noted above, getting more/better counseling for your health anxiety/depression can only help and you sound like you are spiraling right now. If you need more support, it's up to you to find it -- it's an investment of time in the rest of your life.
 
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