My Story - Is It ALS?

[Nikki J]

Nothing suggests als. Nothing on the emg as Laurie told you and the summary confirms. Symptoms getting worse? Then you speak of fasciculations. Learn to ignore them. They are meaningless and the more you focus on them the more you will twitch. Swear off mnd forums, work with your doctors and go live your life

 

[PiotrS]

Thank you very much for your answer.

Yes, I mean those unfortunate fasciculations. They are more and more frequent, more and more intense. Even people at work ask if I'm OK, because they see, for example, muscle twitches on my forehead, or muscles in my arms or legs, when I'm dressed more loosely.

I know I shouldn't get worked up, I even started psychological therapy. But believe me, over the past 2 years I've been to a dozen or so doctors who have said very different things. Not always positive things for me.

2 years ago, at my first visit to a neurologist after a detailed neurological examination, I heard "please come back in 3 months, then I'll confirm the diagnosis... if you're able to come."

 

[Nikki J]

And that statement two years ago was clearly wrong.
I am glad you are getting psychological help. To assist you in moving on I am closing this thread. Please do not start another
Good luck