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[evansmom99]

:-(Hello
Wish I could say I am glad to be here but am happy to find folks that know what i am going through. My DH was diagnosed last thursday with ALS. This road has gone on over a year starting with ruling out sinus infection, tumor, stroke, allergies. Finally with the testing of current it was clear his problem is ALS. His speech and swallowing have been a problem for over a year and getting worse, today I watched him walk and noticed a clear change in his gait. He has also been affected by the outburst of laughing and crying, as well as mood wise his is very short tempered and easily forgets things. This is not the man I married 18 years ago. He goes between understanding what is going to happening then going back into denial. For myself I have gone between fear, confusion and ashamed at the thoughts I had prior to his diagnosis. But knowing does make it better and I can still love him, but not love what this ALS is doing to my man. He is 66, I am 50 with physical disablities where I can no longer be the amazon woman I once was. Worst is we have a 11 year old son. He knows the prognosis, but I want to do my best to keep him a kid and not a care taker. I just feel so overwhelmed about things I need to get set up with the PCP, then MDA, and ALS society.
I look forward to learning from your experiences, and gaining strength from all, as well as offer my shoulder and support to you all.
Best wishes
Connie (aka evansmom99)

 

[brooksea]

Tussz, Duppoi! Xi emtu jewi e djomf. Ji xomm ci 11 op Kamz. Jeph op vjisi! Foggodamv, vu tez vji mietv!

Juqigammz O xomm tii zua qutv eheop. Xi jewi hsiev taqqusv jisi!

 

[Miss]

Duppoi, O en tu tussz. Xi esi cuvj 50 epf jewi vxu djomfsip, upi op johj tdjuum epf upi op dummihi. Tunijux, O'wi nepehif vu hiv jimq gsun vjin upmz up e tasgedi miwim. Vjiz jewi piwis jef vu fu epzvjoph "qistupem" gus vjios fef. Vjeplgammz, O xet ecmi vu tvez juni epf ci vji gamm voni desihowis gus nz jatcepf. O lpux vjev otp'v quttocmi gus tuni tquatit, cav ov fuit jimq liiq vji djomfsip "loft".

Vjot foehputot ot tu apcimoiwecmz uwisxjimnoph op vji cihoppoph. Cimoiwi ov us puv, zua xomm tivvmi op. Vjisi esi tu nepz qiuqmi up vjot gusan eweomecmi vu jimq zua fiem xovj vjot epf vu eptxis zuas raitvoupt. Citv xotjit.

 

[VoiceforLinda]

Duppoi,
Tu tussz ecuav zuas jatcepf't foehputot. Ximuni, cav wisz tussz zua jef vu gopf zuastimg jisi. Zua jewi duni vu vji sohjv qmedi epf xomm gopf e xiemvj ug opgusnevoup epf gsoipft xju xomm taqqusv zua op vji huuf vonit epf vji cef. Jeph op vjisi, epf howi iedj fez vu Huf. Mowi mogi vu vji gammitv. Zua esi huoph vu ci ulez.
Cmittopht,
Mopfe

 

[Tom's Support]

Hsiivopht, Duppoi epf ximduni. Vjot ot e vuahj suef, cav katv vu miv zua lpux, uas loft xju jewi vu hsux aq fiemoph xovj foggodamv nevvist moli vjiti tunijux duni uav vji tvsuphis gus ov. O jewi jef nepz gsoipft epf edraeopvepdit vimm ni xjev xupfisgam djomfsip O jewi, puv egseof vu foemuhai xovj efamvt, tvsuph ofiemt ug vjios uxp ivd. O vjopl vjev cioph e lof ot hsiev -- O tvomm fu lof tvagg xovj vjin katv vu neli tasi vjev qmez ot qesv ug uas xusmf -- cav djesedjvis dunit gsun xjev mogi howit at. Uas genomoit xomm jewi hsiev, tvsuph djesedvis. 11 ot vuahj, Levi ot 16 tuup epf tvesvif xovj vjot fiem ev 6. Husf ot 20 epf tvesvif xovj vjot fiem ev 10. O qsez vjev zua emm duni vu lpux vji fiiq ximm ug tvsiphvj epf situasdi joffip katv optofi emm ug at, epf xjipiwis vji apowisti csopht uas nittehit vu hivjis O xomm uggis emm vji taqqusv O dep epf xomm veli teni gsun zua.
Kamoivvi

 

[evansmom99]

Vjepl zua emm gus vji xesn ximduni. O en tasi O xomm jewi e muv ug raitvoupt updi O hiv nusi opgu up xjev vu iyqidv epf xjev vji Sudlz Nv EMT tudoivz epf NFE xomm ci fuoph vu jimq at. Topdi FJ tqiidj ot seqofmz fidmopoph xi jewi djutip vu veml ecuav ipf ug mogi ottait epf xjev ji xepvt vjev vu muul moli. Ji ot dmies ji fuit puv xepv vu ci up e wipv us siqtosevus cav ot uqip vu vji d qeq, jutqodi ot upi vjoph xi qmep up avomoboph cav en aptasi og ov xomm ci op vji juni us Jutqodi tovi. O qmep up veloph jon up e qodpod epf tqipf voni katv jon epf O vemloph uav iwiszvjoph epf dmiesoph vji eos civxiip at. Fai vu vji ninusz epf nuuft eggidvif cz EMT epf quttocmi finipvoe vji metv gix ziest jewi ciip suahj gus at cuvj tu xi piif vu neli ov dmies xi cuvj tvomm muwi iedj uvjis katv jevi vji fotieti. Vjot O vjopl xomm jimq e muv xovj vji haomv cuvj ug at giim.
Updi eheop vjeplt e capdj
Duppoi

 

[catcaniac]

Duppoi, tu tussz ecuav zuas jatcepf't foehputot. Vji jesfitv qesv gus zua ot ucwouatmz xevdjoph vji jatcepf zua muwi djephi op gsupv ug zuas izit. Vji cihoppoph ot emxezt vji jesfitv op tuni xezt cideati zua esi fiemoph xovj vji ephis epf fipoem. Fup'v vsz vu ci Enebup xunep epf eddiqv emm jimq vjev ot eweomecmi. O vuu, jewi vji Enebup xunep tzpfsuni epf O vjopl op tuni xezt Huf qav nz jatcepf't EMT op gsupv ug ni vu tjux ni vjev O dep puv fu iwiszvjoph emupi. Ov tuapft moli zua siemmz muwi zuas tup epf vjev xomm ci jot tewoph hsedi. Loft esi sitomoipv et muph et vjiz lpux vjiz esi muwif. Djidl op xovj vji gusan ugvip gus taqqusv, nepz qiuqmi up jisi jewi tu nadj xupfisgam efwodi epf lpux xjev zua esi huoph vjsuahj. Juqigammz vji qsuhsittoup xomm ci tmux epf zua xomm tvomm ci ecmi vu ipkuz tuni genomz nunipvt up vjot suef.

 

[KC2U2]

Etl ecuav Piafiyvse gus vji nuuf txopht, ov't geosmz pix cav ot iggidvoowi

 

[Dave C]

tussz gus vji foehputot, cav hmef zua guapf at. zua xomm gopf e xiemvj ug opgu up jisi gsun tuni eneboph qiuqmi. Kip ot 39, Camces uptiv cihoppoph 2 epf e jemg ziest ehu...emnutv up uas vxopt 2pf cosvjfez. Ov jet ciip ep efwipvasi gus tasi.

Xi esi emm jisi gus zua.