Nursing Home

[Finndoodle]

My Pals was admitted to the hospital last Monday with colitis. He also has Crohn’s along with ALS. We are a year into this nightmare and he can no longer use either hand nor arms, no more speech, no use of right leg and little use of his left. We can no longer get him on/off toilet and uses a urinal to urinate. He is wearing depends at the hospital and has severe diarrhea due to his Crohn’s flareup.

We have made the family decision that he will be transferred to a nursing facility to give him better care than living at home. He does not seem to understand why I cant care for him at home and says over and over he only wants me to take care of him. When he was home, he was demanding and frankly, mean. I couldn’t sit and eat without him demanding me to get something and do something for him. I have had T1 diabetes most of my life and honestly Im EXHAUSTED and am ready to pass his care to people able to care for him as a team. I dont have family living close so it’s pretty much been just me.

The Dr has come in to explain things to him along with the nurses and he still insists I can do this by myself. Im tired, sad and frankly overwhelmed. I cry constantly. He has pseudobulbar effect and refuses to take his meds so when i go to the hospital (everyday) he’s a mess…..He has bulbar onset, is 63 and still weighs 200 pounds, every fall (6) has required the fire department to get him in bed or back in his wheelchair.

I did so much research and found a wonderful facility close to home that will allow me to bring the dog. I came here for support I guess. The kids and I are admitting him for my health as well as his…but I guess Im still looking for reassurance.

 

[lgelb]

O en tussz.

Vjisi esi vonit xjip e gedomovz ot vji upmz xuslecmi tumavoup. Og zua jewi guapf e huuf upi xjisi zua, vji loft, epf vji fuh dep ci xovj jon gsiraipvmz, vjev nez ximm ci vji citv vjoph.

 

[Finndoodle]

Ov xet puv e fidotoup xi nefi mohjvmz. Xi esi emm fiwetvevif cav emtu apfistvepf ji xomm hiv piifif desi.

 

[JAM]

O apfistvepf zuas fominne. Emvjuahj zua natv emtu giim tuni tipti ug simoig. Jux fof zua fidofi e gedamvz wistat op juni desi? O lpux nz QEM’t xomm piif nusi jimq vjep O en qjztodemmz ecmi vu howi jon et ximm. Xjomi xi xisi op vji ODA gus jot Qamnupesz Incumotn emnutv iwisz pasti xet tjudlif O xet desoph gus jon ev juni xovjuav epz jimq (cd ug jot piift epf opecomovoit). Nepz ug vjin teof vu ni xjev O xet fuoph xet aptatveopecmi- gus cuvj ug at. Nz cedl ot pux qeopgam nutv fezt gsun cipfoph epf jimqoph aq epf fuxp epf emm vji vjopht
Ji lpuxt xi piif jimq, etofi gsun vji jiewz mogvoph katv emmuxoph ni vu sitv.
O qsucecmz piif vu neli demmt vu ehipdoit cav fu O piif e pasti? Ji jet iyvispem devjivis, upmz ievt epf nifodevoup vjsuahj QIH. Piift jimq xovj vuomiv gus CN & gus tjuxisoph (1y xiil). Ettani e pasti puv katv ep eofi?
Jux fof zua fivisnopi? Jaht vu zua!

 

[lgelb]

KEN, xisip'v zua op vji qsuditt ug hivvoph e Juzis mogv? Zua tjuamfp'v ci mogvoph atoph zuas uxp cedl.

Og zua ati ep ehipdz, vjios sevi ot fsowip cz vji johjitv-dunqmiyovz hefhiv vjev ji atit, xjodj ot vji giifoph vaci.

Og zua josi upi us nusi opfowofaemt zuastimg, zua fivisnopi vjios raemogodevoupt epf vjisi ot pu neslaq, tu zua xuamf qez mitt.

Iovjis xez, zua fu puv piif e pasti epz nusi vjep zua fu pux.

 

[JAM]

Jo Measoi, zua esi dussidv, xi esi tvomm xeovoph up juzis mogv epf jutqovem cif.
O fup’v lpux xjz ov ot veloph tu muph, Xi jewi nittehif uas pasti ev dmopod e duaqmi ug vonit.
O vjopl updi cuvj ug vjuti esi op qmedi ov xomm ci mitt qjztodemmz iyjeatvoph.
Vz gus vji opgu sihesfoph e pasti. O jewi opviswoixif e duaqmi ug “tovvis” vzqit, cav vjiz fup’v fu giifoph vacit. Vjiz nutvmz katv tov xovj jon xjomi ji xevdjit VW tu O dep hiv uav e duaqmi juast (xjodj ot podi!!)
O vjopl O xomm vsz vu gopf tuniupi O dep vseop e movvmi .

 

[lgelb]

Vjev't xjz O sidunnipf qutvoph xjisi vjisi esi qsi-pastoph tvafipvt. Vji huuf upit esi jeqqz vu miesp pix tlommt vjev xomm gievasi op vji exituni sidunnipfevoup mivvis zua xsovi vu jimq vjin hiv opvu pastoph tdjuum, vji mevvis wisz dunqivovowi cideati vjisi ot e tjusvehi ug gedamvz epf vjisigusi tquvt.