So I am anxious too

[cissnei]

My symptoms are:

Whole-body twitches that comes and goes (not that worrying about this unless it concentrates to where weakness is)

Left side is a lot more tremor-y under load (such as when I lift a 5kg dumbbell from relaxed arm to in front of me)

Unilateral self-tested Hoffman sign on right (doctor did not test that in my visit and said she don't care about that, Hoffman is not really that important in her opinion)

Left pinky toe a lot more tremor-y than right and has near clinical weakness

strong whole body tremor occasionally at night when right before sleep or right after awake, once per month, starting from the left side. (this does not concern me that much since whatever comes and goes is not usually in ALS visual field, but left side heavy tremor, well)

Doctor cleared me after a basic clinical exam, saying that major muscles does not have clinical weakness, which I already know, and saying that my risk level is low. But-what about tremor? I heard in anecdotal account that someone get diiagnosed because arm holding in front tremor, albeit that is not under load

Did not dare to do EMG, the doctor said that EMG is not that important for me too though

 

[lgelb]

Other than possibly suggesting some torso exercises to build strength, no reason to think about further care that I can see, and certainly don't see your reason for concern re ALS.

Anecdotal accounts are stories, and should be treated as such.

 

[cissnei]

Thanks for taking time to reply me, much appreciated