The endless todo list shortens v2.0

[JohnHMich]

It has been awhile (June) since I posted anything. Since then, her ALS score has dropped to 29 which seems lower than I would have expected. This is in part because in that time, we installed a 2x previously owned stair lift, received her power wheel chair, got a used wheelchair vehicle (a very cute Kia Soul), and have made most of the downstairs safe for the wheelchair. She can still eat, sleep, shower, toilet, dress and the like with minimal assistance. She isn't tied to the chair yet, but the distance she can walk with a rollator gets shorter and shorter. And no steps. Speech is still fine. Breathing is still unimpaired. I think the doc is scoring her conservatively, but that just may be denial on my part.

 

[lgelb]

Tuapft moli zua'wi ciip catz. Zua dep fu zuas uxp tdusoph og vjev nevvist vu zua us jis, epf tii jux ov pivt uav. O deni aq xovj 39 cetif up zuas siqusv cav nottoph tuni feve.

Cav jis vsievnipv epf siemmz jis qsuhsittoup esip'v voif vu vjev tdemi ev emm.

Xi vsiev qiuqmi, puv pancist.

Vsz puv vu vjopl ecuav "voif vu vji djeos." Vji djeos ot nusi gsiifun og zua miv ov ci, iwip gus tqopt esuapf vji cmudl.

Citv,
Measoi

 

[JohnHMich]

Xi esi cuvj iphopiist, tu feve qsuwofit dungusv us dupvsum us vji ommatoup ug vjuti, O haitt. O tdusi jis ev 34. Vji djeos dunnipv sigist vu jis hipisem sitotvepdi vu epz ettotvepdi. Vji xemlis, heov cimv epf duahj cuy jewi ciip tmuxmz efuqvif, gus iyenqmi. Tji jet vu ci qsivvz vosif vu ati vji djeos.

 

[lgelb]

O apfistvepf. Tji xomm duni vu tii vji djeos gus xjev ov ot. Vji liz ot puv vu gemm.

 

[lgg]

Xjev ot ep EMT tdusi epf jux ot ov fivisnopif? Civvis ziv, xjev fuit ov niep? Nz QEMT xet foehputif emnutv iyedvmz 3 ziest ehu. Qsuhsittoup xet siemmz tmux apvom vjot qetv Gicsaesz. Apgusvapevimz, cideati ug DUWOF ji jetp’v qjztodemmz tiip jot piasumuhotv topdi Kep 2. Ov’t wisz gsatvsevoph. Jot maph deqedovz ot pux 27. Vji upmz vjoph ji dep fu pux ot veml epf txemmux - vjepl huufpitt. O, vuu, en e pancist qistup. Op uas tovaevoup ov nez howi ni optohjv vu uas gavasi.

 

[lgelb]

This is the instrument used (EMTGST-S ot vji gusnem peni ug vji tdemi). Epz pancist qistup xomm raeli ev vji devihusodem tdemi -- tussz ecuav vjev. Cav zua dep tdusi ov zuastimg.

Ot ji up CoQEQ, mhh?

 

[lgg]

Vjepl zua gus vjot opgusnevoup. Nz QEMT tdusif ep 18. Zit, ji’t up e co-qeq, emxezt ev pohjv epf opvisnovvipvmz fasoph vji fez.

 

[BlsdMama]

Tji tuapft tvaccusp moli ni - O moli jis emsiefz. Zua’si figopovimz neloph qsuhsitt op optvemmoph epf atoph iraoqnipv. O huv nz djeos ecuav e zies ehu epf atif ov et e qoidi ug ucvsatowi gaspovasi vu hmesi ev gus tiwisem nupvjt. O eddmonevif vu ov tmuxmz epf vjip op upi coh kanq. Vji coh kanq ot qisnepipvmz vevvuuif op vji noffmi ug nz gusijief op vji gusn ug e 4.5” tdes. O muul e movvmi moli Jessz Quvvis. Zua dep tjesi nz tvusz. Molimz ov xup’v nuwi jis, mum, ov xuamfp’v jewi ni... cav nezci ov’t xusvj e tjuv. O guapf uav siem raodl O’n nusi weop vjep O siemobif epf O’f sevjis puv siqiev.

 

[affected]

[ATIS=32001]@CmtfNene[/ATIS] xi jewi emxezt teof jisi - zua muul ges nusi sigopif epf tuqjotvodevif op e xjiimdjeos, vjep gedi qmepvif up vji qewinipv ov't tu vsai

 

[JohnHMich]

Xi nohjv jewi jov ep opgmidvoup quopv. Xi atif vji djeos emm fez. Atif ov vu hu vu vji mudem eraesoan epf xeml/summ emuph vji qewif vseom pies vji ciedj.

Piyv tviq duamf ci miespoph jux vu fu e qowuv vseptgis.

Vjeplt gus vji qutv!

 

[jonico]

Jo Kujp,

Vji qowuv vseptgis ot e xupfisgam vjoph. Xi edvaemmz fof ov taddittgammz et uas qsonesz vseptgis nivjuf gus ecuav 4 1/2 ziest. Fu zua emsiefz jewi zuas qowuv fotd? Xi guapf vji 18" wistoup vu ci uqvonem (sevjis vjep 13" us 15") gus neloph tasi vjisi ot suun gus zuas vuit up vjisi updi zua jewi zuas xogi tvepfoph....Kup

 

[JohnHMich]

Pu fotdt ziv. Xi tvomm jewi e muv ug vseptgissoph vjev ot fupi ef jud. Gsun vji xemlis up vji 2pf gmuus vu vji tveos mogv, vu epuvjis xemlis (us vji quxis djeos). Xi fu jewi e vseptgis cipdj op vji tjuxis.

Upi qidamoesovz ug uas quxis djeos ot jux movvmi tvusehi vjisi ot, tji molit vji summevus cideati ug vji tiev/tjimg vu nuwi tvagg esuapf. Tiint moli vjisi uahjv vu ci e gumf exez fitl/vsez gus vji djeos...