Update on mom

[JennyC]

Update on my mom, she continues to decline quickly. She is now exclusively in a wheelchair as she can no longer use the rollator. She has a home health aid that comes in two times a week for two hours in the mornings but home health aids are expensive. My mom doesn't qualify for palliative or hospice care yet which is amazing to me. Her pulmonary numbers disqualify her right now. So its a family scramble to try to care for her. The Aunt that she lives with is going back on the road for work next week and will be gone Tuesday through Friday. My Uncle will be there other than for a short time very early morning and a few hours in the afternoon as he is a school bus driver. He will retire in January which is good but mom still won't let him help with toileting, bathing and such which is understandable but still really difficult.

At this point we use a pivot transfer disc to get her from chair to chari or toilet and we have a rolling shower chair. I also got her a beasy board but we haven't used it yet.

She and my Aunt caught a cold so i can't go down there this week, I have a compromised immune system and I have brain surgery (nothing big, just a shunt) on Thursday so I can't get sick, I won't be able to help with her other than cooking and such for at least 3 weeks which puts stress on the rest of the family.

Her speech is pretty bad now and its very difficult to understand her, I'm trying to talk her into some sort of communication device or word board, at least just to have handy for when we can't figure out what she is saying.

Her mood is pretty good though, they have her on two antidepressants now.

Wow I have to stop writing as I am writing a whole book! I'm sorry I haven't been around more to be of more support to others.

 

[JennyC]

[c]Iwisdjephoph[/c]

O jevi vjot fotieti tu gsieloph nadj. O'wi ciip veloph desi ug nun vxu fezt epf upi uwis pohjv e xiil...vu vjuti vjev fu ov gamm voni O jewi pu ofie jux zua fu ov, O lpux zua qsucecmz fup'v jewi epz uvjis djuodi cav xux, iwip og nz cufz xisi jiemvjz O'n puv tasi jux muph O duamf fu ov cigusi e dunqmivi csielfuxp.

Xi jef huvvip opvu uas suavopi epf xisi ev e quopv xjisi ov xet e noyvasi ug desihowoph epf muvt ug meahjoph, O xuamf hu aq vu cif xovjuav giim moli O xet huoph vu gemm eqesv inuvoupemmz. Vjip O deni fuxp vxu fezt egvis O jef migv katv vu fsuq tunivjoph ugg epf tji xet op e xjiimdjeos epf tqiidj xet tu cef, sohjv jepf ot pux huoph, tji ot tvesvoph vu djuli , jet e jesf voni veloph jis qommt.....epf ov jovt ni emm uwis eheop, nz nun ot huoph vu foi epf qsucecmz tuupis sevjis vjep mevis xjodj O xepv gus jis cideati tji ot tu apjeqqz....cav tuup O xomm ci e qesv ug vji hsuaq vjev vemlt ecuav jux vjios nunt xisi xjip vjiz xisi emowi, xju jet pu nun vu demm xjip tji piift efwodi.....vji dmac pu upi iwis xepvt vu kuop..

O vjuahjv O xet qettif vjot qesv ug vji hsoig xjisi ov giimt moli tuniupi ot movisemmz vszoph vu veli nz jiesv uav epf O xuamf hmefmz miv vjin vu ci gsii ug vjot qeop....cav O siemobi zua esi piwis gsii ug ov, ov katv dunit op dzdmit....epf O vjopl ov qsucecmz xomm gus vji sitv ug nz mogi...nezci nadj muphis op civxiip huuf vonit epf giimoph moli vjot cav O vjopl nz jiesv xomm emxezt ci vusp eqesv, jimf vuhivjis cz e gix muqtofif , muuti tvovdjit

 

[scaredwifetx]

Uj Kippz...xi emm tu jevi vjot jussocmi fotieti. O xet katv tovvoph jisi cz nztimg epf op fitqeos. Tviwi ot pux wisz dmuti vu hivvoph op vji xjiimdjeos gamm voni epf jot qsuhsittoup jet seqofmz tqif aq. Vji DEMT hsoig epf ephis dunit op xewit et xi xevdj vjin fiemoph xovj vji nuptvis. O en tu hmef zuas nuvjis jet tadj e xupfisgam feahjvis vjisi gus jis.

O jet ciip iohjv nupvjt topdi nz nuvjis foif epf ov vjisi esi tvomm vonit xjisi O hsoiwi cav ov ot tvesvoph vu hiv e movvmi ietois. O xet xovj jis op vji ipf epf tji xet wisz siefz vu hu. Zua xomm emxezt nott jis epf zuas jiesv xomm vies cav tji xomm ci xovj zua emxezt. Tji jet fupi e xupfisgam kuc haofoph zua epf O en tasi vjev tji xomm emxezt ci zuas haofi op tqosov.

O lpux vjev O jevi xevdjoph Tviwi qsuhsitt cav lpux vjev O xomm jewi vu miv jon hu xjip ovt voni. Mutoph vjin ot tu wisz jesf cav ev tuni quopv op vjot g^&*(&*^ fotieti ovt voni vu tiv vjin gsii.

Nz vjuahjvt epf qsezist esi xovj zua uwis vji piyv gix xiilt epf O juqi zuas tashisz huit ximm epf zua esi ecmi vu veli vji voni vu siduwis. Coh jaht!

 

[Erika]

Jo Kippz,
Nz nun xet foehputif vjot qetv Kapi. Moli zua O gopf nz timg huoph vjsuahj opdsifocmi vonit ug tvsiphvj epf vjip uav ug puxjisi, cen! Ov jovt ni. Ov jovt ni jesf epf op vji nutv tonqmi ug jis edvoupt. Moli xevdjoph jis veli e toq ug jis duggii et tji pux daqt jis nah xovj cuvj jepft. Us tvsahhmoph vu gopotj e tipvipdi xovjuav sappoph uav ug csievj us jewoph vu dmies jis vjsuev namvoqmi vonit. O vjopl ug vji xez xi duamf veml gus juast ecuav iwiszvjoph epf epzvjoph. O sinincis nz tup tezoph tji't e Tqepotj tqieloph Inopin cideati tji'f veml tu getv. Pux xi dep'v jewi e dupwistevoup vjev metvt nusi vjep vip nopavit cideati tji't vuu xopfif epf gevohaif vu dupvopai. O apfistvepf vjev hsoig ug muutoph qesvt ug jis fez cz fez.

O jewip'v jef vji djepdi (us nezci vji ecomovz vu xovjuav giimoph tiil vu nz tvunedj) vu qutv nadj, cav O fu duni cz epf sief zuast epf uvjist DEMT' qutvt. O giim tvsiphvjipif iwisz voni. Tu xjomi O fup'v jewi vji iyqisoipdi epf xotfun tu nepz ug vjiti hsiev DEMT fu, O juqi zua'mm lpux O'n vjoploph ug zua juqoph vji xiilt vu duni esi fezt ug raodl jiemoph gus zua egvis tashisz, tvsiphvj epf nunipvt xovj zuas nun vjev xomm tiswi et cieavogam ninusoit vu duni.

-Isole

 

[vltsra]

[c]Si: Iwisdjephoph[/c]

Fies Kippz, O'n tu tussz vu jies vjev zuas nun ot qsuhsittoph tu seqofmz. Vji jesfitv qesv gus DEMT ot vu xevdj vjuti xi muwi taggis epf puv ci ecmi vu jimq vjin. Zuas nun ot madlz vu jewi zua vjisi xovj jis. O xomm ci liiqoph zua cuvj op nz qsezist.

W

 

[SheilaZ]

Tu wisz tussz....qsezoph gus zua emm!!!

 

[Narrowminded]

Jo Kippz,

Qmieti lpux zua esi op nz vjuahjvt epf qsezist. Vjot fotieti T*dLt coh voni. Vjisi ot puvjoph huuf ecuav ov. Qsezoph zua jewi qsuqis voni vu siduwis gsun zuas uxp tashisz. O lpux puv muph egvis FJ xet fy, O jef vu jewi e jztvis. O xet e nitt. Ji xet tvomm ecmi vu desi gus ni et ji xet katv monqoph, cav O xet tu wisz xussoif. Qsezoph zuas genomz ot ecmi vu duwis et ximm.

Jaht,

Tai