rant

  1. S

    What am I missing?

    Short Rant: Lately people have been using "roller coaster" to describe life with ALS, and I don't get it. I've got ALS and I don't see it as a thrill ride filled with ups and downs. Quite frankly, it seems to be all downhill from here. Could somebody tell me where the thrills are? Where the ups...
  2. Anja

    rant rant grrrrrrrr

    Just want to say GRRRRRRRR.... shout etc. I feel angry & sad now and due to not working left hand can't express what i want to, 1 hand typing sucks big time! :cry: My new neuro from university hospital wanted me to have the emg earlier, but today i was called it is impossible, so have to wait...
    • Anja
    • Thread
    • angry cry emg foot hope money rant sad scared voice wanted
    • Replies: 41
    • Forum: Rants and raves
  3. F

    A short rant then off the merry-go-round

    My PT and I thought it was an inflamed tendon on the palm of my left hand. Not sore, but protruding noticeably at the base of the thumb. I only mentioned it in passing at the end of one of my regular rheumatology appointments, more as a curiosity than anything. She took a look at it, poked a...
    • fitzroy
    • Thread
    • age als? atrophy autoimmune back brain clean emg clinical dihals emg holiday meds neurologist rant second opinion symptoms testing thumb weakness
    • Replies: 4
    • Forum: Rants and raves
  4. S

    overpaid non profit staff

    Just getting ready for the fundraising event here and also just been told that the head man for MND Assoc here in Britain is getting £140,000 per year plus a car. Totally pole-axed. Surely this is not true? Does this mean our fund raising will just about pay for his car service? I now do not...
  5. CoachMeg

    Eyesight issues

    Did you know that ALS can affect the muscles of the eye? I didn't. Everything I had read said that, for whatever reason, the eye muscles tend to be immune form the disease. Well guess what? It can affect the eye muscles. (sigh) My husband has been experience trouble focusing the last few...
    • CoachMeg
    • Thread
    • als caregiving cure eye genetic hope immune information issues muscles neurologist rant stupid symptoms tests vision wanted work
    • Replies: 10
    • Forum: Current caregivers
  6. M

    Please give him a little comfort

    Please when you promise to come out with a comfier chair to put my poor husband out of his misery for the third time, don't ring an hour before and say the chair isn't working ( although you were suppose to have been working on it all weekend to get it ready) and that you will ring me back in an...
  7. Jason's Dream

    I'm truelly Alone and On My Own

    My mom will board a plane to join my Dad 3 time zones away, in a matter of hours, on the 19 week anniversary of Jason's death. She's essentially already MIA. Not spending time with her grandson who has lost his Dad to death at such a young age, lost his grandpa to a job 3 time zones away, and is...
    • Jason's Dream
    • Thread
    • age angry back children dad death heart hours kids life mad meals rant scared young
    • Replies: 20
    • Forum: Past caregivers
  8. T

    Whine and Cheese

    I just wanted to find a place where we could come to if we don't want to rant, drown our sorrows in liquor or not bum anyone at tea. You can bring the whine, I will be here to serve the cheese. I have 2 wonderful shoulders to cry on and I am open 24/7. Come on in the doors are open.
  9. K

    I'm sorry.... your life is too crappy

    These feelings kind of came up from a post today about spouses leaving each other when the other one got sick. I didn't want to start a whole thing on that thread so I came here to rant a little. I had a friend- ex friend, I guess you could put it back in college that I considered one of my...
    • kmendsley
    • Thread
    • age als back diagnosed family family member friend frustrated hope life love rant running sad scared support wanted
    • Replies: 29
    • Forum: Rants and raves
  10. Jason's Dream

    Rant: My Lousy Attitude

    My attitude stinks, and I have been trying t keep it under wraps. But the other night, Mom and I didn't agree on some thing and I had quite an outburst! I have never done that! Thats never been me! But I was shouting and crying and honestly.. I don't recognize myself anymore! I am...
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