rant

  1. jellis86

    This forum is great, but some need to take a chill pill

    In the short time I have been a member of this forum, just over a year, I have noticed quite a change. At first people would give good advice and try and be as helpful as possible...(Those people are still on here but less of them). Lately I've seen the trend of trying to convince people what...
    • jellis86
    • Thread
    • advice als back bipap cals cure diagnosed diagnosis diet helpful money natural oil progression rant rilutek support
    • Replies: 9
    • Forum: Rants and raves
  2. F

    Further neurological workups...

    A question about the next neurology appointment I essentially have three options 1) NCS/EMG at my current hospital through my Neuromuscular specialist 2) NCS/EMG with consult with the first Neurologist to give me an NCS and Sympathetic Skin Response test 3) Do nothing My recent appointment...
    • fitzroy
    • Thread
    • age atrophy autoimmune cell diagnosis early emg mnd mri neurologist neurology normal emg problems questions rant reflex treatments weakness
    • Replies: 16
    • Forum: Off topic everything
  3. Nighthawk

    Post went to...moderation

    I am not posting here very often as I would like to because it's so difficult for me to type and compose a whole post using just one or two unaffected fingers on my weak and atrophied hands. It sometimes takes me over an hour to compose a single post because of my condition. I believe the...
  4. pdcraig

    Partner diagnososed

    Hi everyone, first posting here. My partner was diagnosed in September, confirmed in December. So far the progression is slow. Presenting in one leg, he's experiencing some foot drag. The biggest problem right now and I know this sounds bad but he became an instant invalid after the diagnosis...
    • pdcraig
    • Thread
    • back bed coping diagnosed diagnosis foot frustrated genetic problem progression rant reading scared stages support work worried
    • Replies: 27
    • Forum: Current caregivers
  5. U

    Am I just too sensitive?

    My wife seems so cruel to me. She always does what I call a drive by. She asks a question as she is walking by and keeps walking and as I answer she just yells from the other room mumble mumble mumble. It feels so mean. If I even ask for anything I get the same response. I asked 1 thing in a...
    • Uptown
    • Thread
    • abuse adjustable caregiver heart lonely muscles please help please help me rant wrong
    • Replies: 17
    • Forum: People with ALS (PALS)
  6. Chase_Corin

    stuborn

    Well last month when we went to the ALS clinic the doctors thought that dad should have a power wheelchair that tilts him back so his head isn't listing forward. Well dad dosn't want it because he thinks he will have too hard a time breathing. Because he has a weak diapraham I understand where...
    • Chase_Corin
    • Thread
    • als back breathing christmas clinic dad feeding frustrated hours ideas money neck brace power power wheelchair rant van wheelchair
    • Replies: 7
    • Forum: Current caregivers
  7. notme

    Doesn't matter anymore. Just too done

    I keep trying. We barely exist on my SSDI a d the foodstamps. Barely. The electric is ggoi g to be shut off on the 15th, shrug. They denied the medically needy thing, they said we didn't return the forms. Hello We didn't get the forms. I've trashed my back so bad, I couldn't go with Mel to the...
    • notme
    • Thread
    • back grace idiot insurance meds money rant scooter ssdi stupid worry
    • Replies: 9
    • Forum: Rants and raves
  8. T

    Grow Old Along With Me.....

    Today I was listening to Browning's and John Lennon's "Grow Old Along With Me". Tears flowing down my face. And I realized... I'm tired. Tired of the suffering, the misery, the loss. Isn't what this song is supposed to be for everyone? Why do we have to have children suffering from cancer...
  9. notme

    Rant and Rave Time

    Hey All So, time for a rant and a rave. I'm not sure if it was the cat under my feet or the hole in the floor, but I killed my foot. I was trying to miss the cat and stepped into the hold in my bedroom floor. Heard a horrid crunch and now, my foot is feels pretty broken. I don't think it...
    • notme
    • Thread
    • allergies book cats cold early foot insurance rant vent
    • Replies: 4
    • Forum: Rants and raves
  10. D

    Friday the 13th Thank God It's Over

    Rant: I don't like Friday's when it's the 13th. I usually don't do much on those days. I'm not really superstitious as my son was born on a Friday the 13th but he weighed in at 7lb, 11oz which I figured evened it out. Yesterday I got a call that my daughter that lives 180 miles away was in a...
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