As I write this, my arms are already quickly losing strength, so please excuse typos...
About a year ago, my left arm/wwrist started getting vey weak and painful from time to time. Back in March of this year, I finally decided to go to my GP thinking it was a strain. she noticed aweakness and...
Just a rant here about well intentioned folks. My PALS is starting to have issues with is hands, in particular a couple of fingers that are always curled down and that he can no longer lift upward. We have had more than one person suggest that he use a squeeze ball to strengthen his hand...
I can't help but feeling guilty - massively so.
We were so late in finding the diagnosis - even after 3 neurologist. It progressed so fast and I was blinded to anything serious.
As it progressed quickly I was foiled at every turn: Took time to get certain meds, time to get a peg tube, time to...
als
assisted living
clinical
clinical trial
diagnosis
guilt
headache
increase
insurance
medical
medicine
meds
neurologist
peg
rant
test
therapy
treatments
trial
venting
volunteers
1 slightly used husband with a diagnosis of ALS.
He has wicked mood swings but has not bitten anyone as of yet.
He may or may not speak to you in a day.
He may snap at you for nothing, or get frustrated with your kids who love him and would do anything for him.
He likes to get up numerous times...
Warning! This is a rant. A release of my frustration how insurance companies have continually through the years have dictated and thwarted the plans of my doctors and me for getting what I need to survive as a productive person on this earth!
It doesn't suprise me that after all the hoops my...
Warning - this will be a feeling sorry for my self rant.
"Couldn't sleep last night. I got an awful headache at 1:00 am and it proceeded down my neck and into my shoulders. Then my feet started to hurt. This morning it was
truly hard to get up and I began to feel that this whole process is...
Sorry for the rant in advance. I am frustrated with this ALS. We have had many blessings and support since I was diagnosed but it seems as though we are just barely treading water.
When we were told we were going to need a handicap van we were very thankful my grandmother had the van she and...
Hello,
I am new here but looking for advice. My husband is wheelchair/bed bound and on non invasive life support. He has the potential to remain this way for an unlimited amount of time which is a whole different problem and discussion! but he is in terrible pain with his teeth. The oral...
I wanted to rant but after I typed it out I kept thinking of all I have to be thankful for and what an angel my PALS is. And she never gives in to ranting. So I guess that now my rant is that this disease sucks and I need to man up. "Ain't got time to bleed." (Movie reference)