rant

  1. Lkaibel

    I Need to Lose It

    Okay, I have had a full month past my husband's Dx of positive attitude. Yes, I know many PALS and CALS have had years of it. Thing is, who wants to be either one? We know the answer to that. I was looking at pictures of myself as a kid, and I felt sorry for that little girl who grew up to have...
  2. affected

    Rant - CALS only please

    I am so terribly saddened to tears to realise from that incredible PALS thread that there are so many who are in what I find a less than ideal, sometimes less than acceptable situation. I'm not wanting to talk about specifics of any PALS here, definitely not. I'm talking in a general way only...
  3. sleepy

    Rant - pals only please

    I'm 6 months in. I've tried to be positive to friends and extended family. It's ok... I'm staying positive. Because what else can you say? And most of the time it's true. I've tried to keep a brave face for my kids. Mummies hands don't work very well... Yes, Mummy is very slow. Why did you fall...
    • sleepy
    • Thread
    • cals chair exhaustion family frustrated kids life manual mummy pals power power chair rant scared work wrong
    • Replies: 41
    • Forum: People with ALS (PALS)
  4. H

    Dealing with anticipatory grief...

    First time in a forum! I'm not sure how to start this but... I am the caregiver to my wife and we were diagnosed on June 6th, a month ago. BTW I have been using the royal "WE" when it comes to my wife's health for a while now. Margarite (not her real name) was diagnosed with Crohn's disease in...
    • Hubby caregiver
    • Thread
    • als caregiver chair diagnosed family fear grief health insurance manual planning rant support treatment trip unknown walker website
    • Replies: 61
    • Forum: Current caregivers
  5. N

    Trouble in Paradise

    ok, semi-rant coming: So today I came home to find yet another nurse in tears. This gal is one tough cookie too so I was really surprised. I'm starting to think maybe DH is starting with some FTD. Either that or he's just being pissy to be pissy. For 6 years we have had one way of...
    • Narrowminded
    • Thread
    • bed communication conversation eyes frustrated ftd nurses questions rant vent wanted
    • Replies: 27
    • Forum: Current caregivers
  6. A

    Research Progress

    Please don't get the bashing stick after me. I guess I just need to vent. So how much progress have we made since the first case of ALS was diagnosed? Let's see Lou died in 1941. He lasted 2 years post onset. Wow what progress we have made. Seems all the other illnesses have made advancements...
    • All is lost
    • Thread
    • als als research bucket challenge cure diagnosed ice ice bucket challenge information money onset rant research treatment usa vent
    • Replies: 8
    • Forum: Research and trials
  7. S

    Needed Help.. In laws sent the Police

    we are 5 1/2 years into our Journey with my dear Wife's ALS. Now that she needs help during the day that her 80 year old Mom ( sweet lady ) can't give her we now have Aids 5 days a week while I'm at work. This is out of pocket with the help of My Parents. On the weekends its me 24 hours a Day...
    • Staying strong
    • Thread
    • als caregiver children crying father fell heart hours lead night problem questions rant saliva sleep work worried
    • Replies: 7
    • Forum: Current caregivers
  8. scaredwifetx

    Needed to share

    The below post is MY opinion of why we are all here and losing anyone who is kind and supporting is another loss we all suffer. May I also add that I hope to read all posts of support and not be singled out in any group. Janelle, while I understand why you need to leave, I want you to know...
  9. K

    Caregivers Leave (and a little rant)

    I know that we do not know anything in regards to time frame, but then how will I know when to take (if I do) Caregivers leave? I believe here in Ontario we get 32 weeks, how do I know when to do that? Hubby started symptoms last year and was formally diagnosed in January this year. At that...
    • Kelly5538
    • Thread
    • arm caregivers choke diagnosed diagnosis frustrated ftd lifts mad mobility money rant speech symptoms voice walker wheelchair
    • Replies: 13
    • Forum: Current caregivers
  10. H

    Loaner Tobie Doesn't Work

    My husband's speech has gotten so bad, only 2.5 of us know what he is saying and only half the time. It took forever to get speech therapist apt for their report then finally had to use my insurance's case manager (sort of a white glove service) to hurry up the sales rep at Tobei. So finally it...
    • hovihea
    • Thread
    • eye eye gaze frustrated ideas insurance medicare progression rant speech support trip work
    • Replies: 5
    • Forum: People with ALS (PALS)
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