rant

  1. B

    Crappy Day

    Just venting as I know there are so many that are much worse off than me but I want to share this day. Woke up at 4:30 am. Could not get back to sleep. Just laid there for 2 hours so I wouldn't wake up my wife. We are now 1 month in to our home remodel so we are living with my parents in their...
    • BlueandGold
    • Thread
    • back early feeding hours information mattress meds peg pwc rant shower sleep tube feeding venting work
    • Replies: 14
    • Forum: Rants and raves
  2. P

    mother in denial - tough choices

    My mother is single and I am her only child. She lives in the southwest and I live on the east coast and travel every month or two to Africa for my job, which I love. First, a little bit about me. My job is at a prestigious organization and I just received a promotion, and may soon be offered a...
    • peacecomesfromwithin
    • Thread
    • acupuncture als back balance caregiver choking confused denial denial of diagnosis diagnosis emg fell food frustrated hip medicine mnd mnd/als muscles neurologist rant sad scared spasms speech student tests thumb tongue travel tremor
    • Replies: 7
    • Forum: Current caregivers
  3. C

    Helpless and scared

    My mom was diagnosed with FTD in February of this year and then diagnosed with ALS in September. We were told that it's rare for the FTD to happen first but not unheard of. We started noticing changes about two years ago and after taking her to numerous doctors we were told its FTD. I feel like...
    • Corina
    • Thread
    • ability als back breathing dad diagnosed feeding feeding tube ftd hours life quality of life rant reading scared tracheotomy
    • Replies: 10
    • Forum: ALS and frontotemporal dementia
  4. Nuts

    Handling dead weight---crap!

    We've given up on standing transfers and as of this weekend are now either sliding or using the lift. Tonight it struck me just how bloody difficult it will be once he's truely dead weight. OMG! Just rolling him over to get the sling off was a struggle (he weighs over 200lbs). At his last PCP...
    • Nuts
    • Thread
    • bed bed sores lift mattress rant sling transfers wanted
    • Replies: 25
    • Forum: Current caregivers
  5. SLAUGHTER1555

    SMH! Vent Day!My Rant

    This can be so overwhelming! ok so tried to get help from the hamilton county but they turned us down not surprised tho. We had requested a home health aide but before we can get one a nurse had to come and check him out. In order for the aide to come a nurse has to be in the home to well we...
  6. L

    Is it just me?

    So, I am all of technically 4 months into this, but I think it's more like 2 years.....but when I wake up in the morning lately it just seems that every morning I am worse. Seriously, how fast is this stupid disease supposed to go? Every day I find I am less able to do things. I am still...
    • lilblackhorse
    • Thread
    • arm balance chair clothes confused family goodbye lift power power chair rant reading relative stupid twitching walker
    • Replies: 5
    • Forum: People with ALS (PALS)
  7. Green Queen

    Please CALS. Help me help my CALS help me!

    I feel very...betraying...to Wayne to post this. He doesn't read the forum...but it's hard to admit this kind of stuff... I need help in getting him to help me without me having to nag or ask all the time! He often says he's not a mind reader, but as an example, I've needed help putting my...
  8. smoochiegal

    missed Role call hanging in the ER instead. :(

    Hello all my dear friends. What a week. What huge fights. So much frustration. So much stress. So the week started off well. We had a wheelchair delievered as his legs and balance are so bad. But surprise, surprise he refuses to get into it.. Still insists that he can walk down the stairs to...
    • smoochiegal
    • Thread
    • angry balance brain brother falling fell frustrated hours love rant story stress weakness wheelchair worry
    • Replies: 10
    • Forum: Current caregivers
  9. I

    UGH - My First Post

    Hi, I'm a first time poster and I just need to rant a little if that's ok. I've been on the board reading - and find a lot of love and a lot of pain in here - sorry my first post is so ranting. My father went to Mayo again yesterday. A while back they suspect the muscle shrinkage/nerve damage...
    • illus23324
    • Thread
    • als anger angry arm back brother cold conversation dad emg family father frustrated hope love mri muscle neurologist pain problems rant reading surgery testing therapy
    • Replies: 13
    • Forum: Newly diagnosed
  10. smoochiegal

    up.. down.. who knows anymore.

    My friends, Not sure if we are on the up swing or the down swing of this rollercoaster... We spent the last 3 days crying and him begging me to give him all of the meds we have in the house. He is done. But apparently his body is not. I am so emotionally exhausted. I am so angry that God would...
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