rant

  1. J

    Pma to mnd

    I saw my primary neuromuscular doctor today for an eval and a really long discussion of where I am at. Basically she said I can't be called PMA until 2+ years of LMN symptoms from when they first started. I will be 2 yrs in Sept. I do have a mild hyperreflexia that I've had from my first eval...
  2. D

    Wrong Forum

    Sorry about my rant. I'm new to this I shoudn't have posted my angry remarks in the Stories of Hope forum. Denny
  3. glupavomomiche

    Am I that selfish?

    Well, here goes my first rant. It's like this... I have a younger brother. My parents emancipated him and let him get married to his knocked up girlfriend when he was 15. He has occasionally held a job, but never uses that income to pay actual bills. He has three children that we actually...
  4. CGAR

    Diagnosis before receiving a head MRI

    I was diagnosed before receiving my head MRI which I thought was strange. I thought they would eliminate all other possibilities before diagnosis. I was told by dr that he would order the MRI, but it is doubtful to show anything! Guess what? MRI showed 2 cerebellum strokes (on the left), which...
  5. J

    A big bone to pick

    Hello, I went into Wikipedia, looked up ALS and I decided I should edit. I thought ALSGA should be there as should the ALS societies across Canada, so I added them. ALS Canada is there as is ALS TDI so it seemed fitting that the societies and Guardian Angels should be part of the wiki search...
  6. Jason's Dream

    I hate this disease!

    Just another rant... Today I was reminded again how this disease alienates us from other people in our lives... from doing the ordinary, mundane, and fun things in life... a simple post on a social network listed every girl friend I know and how they had a night out and what fun they had...
  7. M

    Rambling

    I just need to rant and ramble for a bit, clear my head. My mom was diagnosed approx 1 year ago, with symptoms for years before diagnosis. She has little to no use of both arms now, some strength in her legs, she is still chewing, swallowing, breathing, but noticable decline in all three, on...
  8. Jason's Dream

    Another Rant

    I am soo tired of people saying things like "I am such a strong women", putting me up on a pedestal, or people talking down to me in thier speech to me, calling me "Little One", "Child", and Kid. I am not strong, I am human, and have a hard time, ups and downs like anyone else. I am nothing...
  9. CoachMeg

    False sense of security

    Just a little rant. We started the summer with emails from retirement and SDI that all was in order and we were good to go. Husband sent a courtesy email on Monday to retirement and it is a good thing we did. They are still waiting on information from his employer. So, wanting to make sure...
  10. M

    Update - For The Undiagnosed

    Hi Everyone! I have been wanting to post on here for a long time and I am just going to do it! This post is intended for the individuals looking for an answer and who have NOT been diagnosed with ALS by a doctor. Over 2 years ago I experienced some very disturbing symptoms that ultimately...
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