rant

  1. CoachMeg

    My frustration rant...

    Ok - need to get this off my chest. I am so frustrated. I am trying so hard to do the things that my husband has done, and also do my own chores. I mowed the lawn and even used the weed eater. What I get is "Well, why didn't you do that area over there?". Or, "I don't do it that way." I...
  2. Twinsmom

    Blehhhhhh

    Hi everyone, I've been hiding the last several months-I go through periods where I just want to pretend everything is 'all better'. You all continue to be in my prayers. While Bucky is STILL not with a more definitive diagnosis than MND, the doctor has now stated he thinks Bucky has PMA. The...
  3. Chris_b

    Its like being on a roller caoster!

    One minute your up and having a great time, then straight back down to a real low. It just seems that when something good happens, a bad thing has to follow up and kick you were it hurts. This is what its been like for the last 10 months or so. The latest is on such a high from our fabulous...
  4. jmaycavagnol

    SCREAM! Frustrations with brothers

    Hi---My mom was recently diagnosed with ALS. She is in Indiana and I am in Texas. I have two brothers in their 50's who live less than 30 minutes from Mom. Brother #1 is a recluse and has not held down jobs and really is a nice person but not someone that you can count on for any type of...
  5. SueG

    health insurance run-around -- frustrated!

    Glad there is a Rant & Rave page. First, I know I am lucky to have insurance. BUT...... they sure do like to string you along! On Nov 16th my ins co denied a referral to the ALS clinic at Massachusetts General that my local neuro had referred me to. I immediately called, was told that the...
  6. T

    UGH! Do I count?

    So...I'm sorry that my first post has to be negative, but, here it goes! I am the only caretaker for my 70 y/o grandmother (who raised me) who has ALS. She was recently was admitted into in-home hospice, which, I think, is a mixed blessing. In one regard, we are getting more help. In...
  7. M

    Anyone with experience?

    Thought I might send an update and ask a few questions. So far, I've seen the neurosurgeon and he said right away, that there is no way what's going on in the c6-7 area is my prob. So then my next trip was to see an ALS specialist, since a neuro nurse I know ran my symptoms and EMG info past...
  8. arkallen

    Of Presents and Presence

    “It takes me about an hour and a half to wake Adam up, give him his medication, carry him into his bath, wash him, shave him, clean his teeth, dress him, walk him to the kitchen, give him his breakfast, put him in his wheelchair, and bring him to the place where he spends most of the day with...
  9. notgivnup

    New here, Hi to all

    I was just last week diagnosed with ALS after 3 years of everthing else diagnosis'. I still refuse to believe it, there are so many things it could be. I go for more test tommarrow, agian EMG/NCV, then speech theripist, pulmonary specialist, My speech and breathing is fine I believe, walking is...
  10. arkallen

    Who do I think I am?

    Now and then a new wind blows, a moment arrives, something shifts irrevocably in the way the world appears; or perhaps in the way we appear in the world. Today I met Christopher, a youngish fellow I see often enough, cruising around town on one of those battery powered mobility scooters...
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