rant

  1. R

    Rhythman Neuro App't Update

    Firstly, thanks to all who have read my posts these past 6 weeks and helped me out. I also want to tell you that I no longer look up anything on Dr. Google, and have only dealt with real doctors recently. That was good advice. :-) I met again briefly with my neuro yesterday and he said he...
    • rhythman
    • Thread
    • advice atrophy back bulbar bulbar als emg fatigue go away headaches mri pain progression rant rapid progression shaking shoulder swallowing symptom symptoms test thumb tongue update weakness
    • Replies: 12
    • Forum: Could this be ALS?
  2. BethU

    Wake-up Calls

    Well, it's rant 'n' rave time again. Have had a series of wake-up calls, and have finally realized that denial is not a good coping mechanism for long. Especially with ALS. My "I can manage" mentality came to a screeching halt about 3 weeks ago, my last trip to the ER, when my LightWriter...
    • BethU
    • Thread
    • abuse age als assisted living back book caregiver caregivers coping dementia denial dynavox feeding free grant hope hours meds mentality nurses power power chair rant suction trip voice wheelchair
    • Replies: 52
    • Forum: People with ALS (PALS)
  3. joelc

    Prepare early and completely

    I was laying in bed last night thinking about this and had the wording all figured out. Now I can't remember how I was going to approach it! It is great to be getting older and not able to remember. LOL. This is going to be a 2 point post. The first point is that everyone should get things...
    • joelc
    • Thread
    • back bed cals children cost early hope ice iron lift night planning problems rant reading renovations risk sling story transfers wheelchairs work
    • Replies: 62
    • Forum: General discussion about ALS/MND
  4. joelc

    Power wheelchair stupidity!

    Today was one of those "Reality” (slap you in the face) days. They always come when you let your guard down and don't see it coming. I have not had enough nerve to venture out for 3 months now because my loaner powerchair, which I am very thankful for, has had an electrical problem that they...
  5. B

    KRAP! (just a rant helps me to let it out)

    I'm angry and there isnt anywhere to direct it to. My wife Dx 7-09 is in the final stages. She began showing symptoms in January. She cant move anything, can't talk, refuses her PEG feeding, is dehydrating, and her extremities are turning blue. She still tries to talk continuously then cries...
    • biskethed
    • Thread
    • angry bed caregivers crying cure feeding home care hours kids peg rant running stages symptoms treatment work
    • Replies: 21
    • Forum: Current caregivers
  6. L

    Hate-filled rant

    I hate this disease. I hate what it's doing to my dad. I hate that he gets frustrated, angry, depressed, and discouraged. I hate that my mother has to see her husband in such pain, both emotional and physical. I hate that Dad can't do what he used to or what he wants to. I hate that he's...
  7. BarryG

    Cyberchondria

    Hello everyone, While I was reading Lorie's blog on Cyberchondria (thanks Lorie) I thought that this topic should be brought forward for all of those people out there who are looking for answers to medical problems that they are having. There are many web sites that talk about how the...
    • BarryG
    • Thread
    • als blog dad free health hypochondria information medical problems rant reading survey symptoms twitches worried
    • Replies: 4
    • Forum: Could this be ALS?
  8. rocmg

    casual how are you?/i'm feeling... update!

    hello everyone. i haven't been online in a while to post anything. my mum is seeing another neuro this time next week to commence the process of getting a second opinion. we are all currently living under this cloud of "possible ALS/ALS-type thing." i really do glance at the clock every now and...
  9. F

    Wit's end

    Hello friends I haven't posted for a while but have been looking at your goings-on. I don't know if you remember that a difficult sibling was back on the scene ? Well now they are challenging my lovely sister and I about the type of care we have for Mum , the cost and whether legally we have...
    • Flowerpot
    • Thread
    • age back cost electric wheelchair flu frustrated mobility nursing home rant speech unsure update wheelchair
    • Replies: 3
    • Forum: Current caregivers
  10. BethU

    Off-topic rant

    Well, it’s time for me to unload again about my husband. This will be long. Sorry. For anybody who remembers, last summer, he developed new symptoms ... collapsing suddenly two or three times a week, being unable to stand or walk (those were the days when I was dragging him around the house on...
    • BethU
    • Thread
    • back balance bed brother chair dementia hours insurance lift meals medical meds nausea pain questions rant relative risk seizures story support symptoms test tests treatment wheelchair work
    • Replies: 12
    • Forum: People with ALS (PALS)
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