rant

  1. Jellycat

    Bridge

    Small rant/muse coming up. I have just dropped my mum off to play bridge this morning. I think she is amazing to be playing as she cannot speak to bid or hold the cards. But with use of various devices and a caring bridge partner she has a fab time. Her mind is spry & she's usually on the...
    • Jellycat
    • Thread
    • conversation disability euthanasia life medicine motor neuron disease pain quality of life rant
    • Replies: 5
    • Forum: Current caregivers
  2. A

    Woke up in a panic

    I woke up having a panic attack this morning.I think it was due to yesterday that when I first went upstairs I had no poblem,later when I went up my legs seem to stiffen up,I guess I can't beleive how quick this is happing.I dread going to sleep at night,because I know in the morning I'm going...
  3. shelleynshaggy

    Busing issue

    I am so annoyed.... This week I called to have Mikayla's bus stop moved to our house and was told no. I have kept the school and their transportation department updated Jim's condition. However, they will not consider a handicapped parent as a reason to drop your child off in front of the...
  4. LizT

    Where is everyone?

    Im sitting here tonight, thinking of my PALS. His name is Ray. He's a great guy. He is 51 years old, has two sons, three grandsons. He used to design and i believe help install sprinkler systems for fire protection in large businesses. He once was working at childrens hospital in Milwaukee...
  5. arkallen

    The Carpenter

    Winter 2010 #8 Buttons, spoons, needles and thread, pens, papers, clothes pegs and jam jars - all of these things have become troublesome in recent weeks. I find them all a little less responsive to my touch; vaguely unhelpful, occasionally disobedient. I suspect they are silent conspirators in...
  6. Blubear

    In My Dreams . . .

    This is what is going through my child's mind these days. She actually wrote her own eulogy, and it is brilliant! I cannot believe this came out of the mouth of my 21 year old little girl. "In my dreams I saw you all naked before me Stripped of all your fears Your hopes, delusions...
  7. halfin

    Second class citizen

    I was at an ALS seminar yesterday put on by the local MDA. The information was interesting although a bit discouraging, some promising stem cell treatments but years away. But what I want to rant about is the feeling of being a second class citizen even here at a conference devoted to the...
    • halfin
    • Thread
    • als back cell conference early hours ice information insurance lead mobility questions rant sod1 stem cell treatments voice wanted wheelchair worried
    • Replies: 20
    • Forum: Rants and raves
  8. C

    Constant Anxiety

    Hi All, It's been a long time since I have been on the forum. Where to start? I was laid off, then found an internal transfer at my company before my final day, so was NOT laid off. I started the new job the last monday in Oct. The job is not a great fit, they combined 2 people's jobs and gave...
    • COlisa
    • Thread
    • als anxiety back breathing dad equipment family heart insurance medical medicare neurologist problems progression rant ssdi transfer venting work worry
    • Replies: 44
    • Forum: Current caregivers
  9. pvale

    ALS clinic Friday.....

    Wow, what an experience. First time at a clinic. Saw a lot of people. Bad news is FCV is down, 66%. Bummer. Looks like the time to figure out if I am going to be able to trache and vent isn't real far down the road. Talked seriously about a PEG. Told me I should get one earlier rather than...
  10. MtPockets

    Your Rant and Raving page, unload your feelings

    Since so many people feel better after letting off some steam, thought I would start a thread where you can complain, gripe, rave, whatever. That way if people do not want to read negative comments, they can go to another thread. OK get it off your chest and let the griping commence. Darn...
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