alsa

  1. R

    ALS Registry Act Update

    For those in the U.S., please put your civics lessons to work and contact your legislators for some support! Tools at http://capwiz.com/alsa/home/ work great. Please ask your friends and neighbors to help, too! Following is from ALSA...
  2. quadbliss

    New ALS Video

    A new video from the ALSA Bay Area Chapter with a positive message. Mike
  3. M

    ALS org testifies before Congress

    The ALS organization testifies before congress. The Advocacy Department had a hearing earlier this week at Capitol Hil. The ALS association called on Congress to speed ALS drug development and ensure that people with the disease have timely access to new treatment. A 35 year old fatherof...
  4. Al

    Attn. Greater Los Angeles Patients

    Help is here for ALS patients Article Last Updated: 03/04/2007 08:42:37 PM PST Patients living with amyotrophic lateral sclerosis (better- known as Lou Gehrig's disease) can get ready for the grand opening of the Greater Los Angeles Chapter of the ALS Association's Center for ALS Care in...
    • Al
    • Thread
    • als alsa brain caregivers financial hope information lou gehrig's disease medical muscle paralyzed power research robert treatment vision
    • Replies: 0
    • Forum: Off topic everything
  5. Daisy

    I need to know...What you feel.

    Hello:-D My name is Daisy and I'm a design student at Emily Carr Institute as well. (if you have already read Joy's thread) I'm working on a school project to illustrate what having ALS FEELS like in order to engage people more in terms of an awareness of the disease. I have researched and...
  6. N

    Grants for in-home care?

    I have a friend with ALS whose family is curious about any programs that help defray the cost of in-home care. I've spoken to ALSA, Medicare and a home health care agency, and no one is aware of any needs-blind programs. Anyone have any help? (The insurance covers medically prescribed visits...
    • notgoingtotell
    • Thread
    • age als alsa cost family friend grants health home care home health care insurance medicare
    • Replies: 3
    • Forum: Current caregivers
  7. H

    Veterans Study

    The Veterans Administration is conducting an ALS study of living veterans through a current enrollment process. They're collecting medical data and also will inform enrolled veterans about clinical trials of medications. If you're an interested veteran with ALS you can contact them at...
  8. Mike27

    ALSA Partners with Botech Companies

    This shows that they're certainly trying! Cheers!
  9. T

    Lifespan Respite Care Act Passed by the Senate

    Received this email today, and wanted to share: -------------------------------------------------------------------------------- The Amyotrophic Lateral Sclerosis Association, Capital Office 601 Pennsylvania Avenue, NW, Suite 900, South Bldg., Washington, DC 20004 (202) 638-6997 * Toll-free...
    • teesa1970
    • Thread
    • advocacy als alsa conference early free grants information pennsylvania questions respite senate wanted website work
    • Replies: 0
    • Forum: Current caregivers
  10. B

    Encouragement please read this.

    I hope that this will help to lift spirits and build true hopes . We live in a very marvelous time . Keep your chins up ,we are almost there . Here's a site from the ALSA community to educate yourself with .http://alsa.org/research/article.cfm?id=455
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