alsa

  1. L

    First Post

    I am a caregiver for my stepmom who was diagnosed with ALS in August 2006. Her symptoms started mainly with speech and swallowing -- she had a stroke 18 months prior to her diagnosis and had lost use of most of her left side so some of the leg/arm symptoms were masked by the stroke. We lost my...
    • lghanson53177
    • Thread
    • advice als alsa arm caregiver confusing diagnosed diagnosis father health helpful home health care information life love medicare reading speech stroke swallowing symptoms wanted worry
    • Replies: 22
    • Forum: Current caregivers
  2. E

    New Developments re ALS

    Hello Everyone, just wondered if everyone saw this: http://news.bbc.co.uk/2/hi/health/6144908.stm I found it quite interesting, Elo Also this one from May 2005, from the ALSA organization: http://www.alsa.org/news/article.cfm?id=644
  3. F

    ALS Clinic Appointment Lead Time

    I have a neuro appointment (first one) in a couple weeks. I seem to be deteriorating daily. I have called the neuro's office to see if they can move up my appointment, but they're booked. They did, however, put me on the cancellation list if someone backs out of an appointment. My question...
  4. C

    Let's get Walkn Kansas City! Sept 17 - See you there!

    There is an upcoming "Walk to D'Feet ALS" Sept 17 in Kansas City, Mo. It is a short walk & is wheelchair & stroller accessible. Come & join me & my family & all of the ALS supporters at the walk. If you can't make it, you can make a donation to this cause that is so close to our hearts &...
  5. David

    Participate in an Event This Summer

    A Call To Canadians: As a follow up, for those of you considering participating in this year's WALK for ALS, please consider creating a website to help raise funds and create awareness about ALS. You can join the WALK for ALS and create a fundraising website here: http://www.als.ca/events/...
    • David
    • Thread
    • als als research alsa awareness canadians fundraising information life research website
    • Replies: 0
    • Forum: Off topic everything
  6. G

    Nolvadex

    First of all, thanks to John1 for his answer to my 1st post. Since 10/2005, i take RILUTEK. Last week, i met one of the best belgian neurologist at hospital Saint Luc/Bruxelles. He proposed me to take a well known drug for breast cancer: "TAMOXIFEN" He is not sure it works for ALS but told...
  7. M

    Which ALS Clinic in Boston?

    Hi, This is my first post on this forum so I apologize in advance if I am breaking protocol. My wife received her diagnosed last week of ALS. Now we need to start the second opinion process. We leave near Boston. I'm wondering if any of you have had any experience with the ALS clinics at Mass...
    • martyt
    • Thread
    • als als clinic als clinics alsa boston clinic clinics communication helpful ideas info neurologist second opinion
    • Replies: 4
    • Forum: General discussion about ALS/MND
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