balance

  1. J

    Quiet cough

    Hi everyone. I have not been to my first ALS Clinic visit, its next Thursday July 20th @ Stony Brook University. I am surprised and nervous at how quickly by annoying foot drop and progressed to where I am at the moment. I am still able to drive and can get around as long as I am walking with...
  2. C

    Diagnosed with ALS/MND May 2017

    Hi my name is Rob. i'm a 34 year old that was diagnosed with ALS or MND as it is called here in Australia in May. i have had balance and drop foot issues for the past 12-18 months i also have issues with my left side, including wasting in my left arm and fingers that i can't straighten in...
  3. N

    21 and concerned

    Hi, let me start by saying everyone diagnosed here is a warrior. And I've thought long and hard before even posting here, purely because I don't want to waste any of your time. I don't know what else to do at this point though, the anxiety from this is killing me. Anyways, I'm a 21 year old...
  4. N

    Tripping vs. Falls

    Hi, I've heard a lot about not letting your PALS fall, that after every fall it speeds up progression. I need to know at what point should an assistive device be used? (cane, walking stick). My PALS tripped over the corner of the area rug that was sticking up this morning and crashed to the...
  5. A

    How to be a true friend?

    Hello. Im writing here bc our dear friend is in his 2nd year post bulbar als diagnosis. His condition is deteriorating - does it matter if it is rapid or slow ? Either way is horrific for him and his family. He is physically "able" but has lost his ability to speak and eat. He has a feeding...
  6. A

    Muscle weakness, hyperreflexia, clonus and spasticity

    Good afternoon, I am one of a thousand people who visit the internet in search of answers that are not readily available from a neurologist. It is a frustrating process that drives us to chat rooms such as these seeking reassurance or answers and I am grateful for any input that is provided...
  7. N

    It's been 13 months...

    Hi Everyone, It's been 13 month's since my husband's diagnosis. It's been a really long time since I've posted on here. I just wanted to update everyone on how everything is going, but first I would like to THANK ALL OF YOU :) You were my support system with your encouraging words of wisdom...
  8. W

    Dad diagnosed with ALS but I'm not convinced

    Hello everyone, This is my first post to the ALS forum and my 62 year old dad was diagnosed with ALS several days ago by a neurologist in Vancouver. He's seen two other neurologists prior who could not discern what issue he was having but I am not totally convinced that ALS is what he has...
  9. D

    Question regarding twitch pattetns and disease spread(long text)

    Well first of all I would like to tell everyone how much respect I've got for the people fighting the disease and for those that are helping their family members to fight. You are a great and brave people I will try to keep it as short as possible, but I do have to give some background info. So...
  10. T

    Very worried should i get checked?

    Hi all, A month ago or so I noticed a heavy twitching in my left tricep that didnt stop for a while. It went away but over the last week i have felt random twitches in my quads both triceps and various other areas of my body including neck and face and abdominal areas. Also this morning it felt...
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