bed

  1. N

    Advice Needed - Catheters

    Hi All, As most of you know we have been at this for a very long time. You may have been told that ALS will not affect your bladder/bowels. That may be the case if your PALS goes quickly, but if you choose to vent and they stick around longer than the suggested time frame, you may end up...
    • Narrowminded
    • Thread
    • abuse advice als back bed catheter hours increase kids muscle night risk turkey vent wrong
    • Replies: 7
    • Forum: Current caregivers
  2. J

    Humidification and non-invasive pressure support

    Hello! Would be grateful for any input. My husband is having a real struggle with respiratory stuff -- especially phlegm. A huge struggle to get it up...don't think I have to go into detail for this group, right? Anyway, we've found a system that sort of keeps it under control, involving...
    • jfaidley
    • Thread
    • battery bed breathing caregivers humidification info phlegm pressure respiratory running support trilogy
    • Replies: 12
    • Forum: Current caregivers
  3. K

    hospital PALS please read

    I know how hard it is to get to the bathroom and I know we're not as active as we used to be but please remember we still need water. I just spent 6 days in the hospital. Dehydration, acidosis, uti, electrolytes depleted. Was on iv the whole time. Had 2 meds plus magnesium and potassium...
  4. KimT

    Medical Grade Sheepskin

    Out of desperation, I ordered this product from New Zealand back in November when I could hardly move. It came last week. When I took it out of the box, it smelled like cooked lamb. It honestly made me sick to my stomach. I also bought the special wash for it because it was so expensive. I...
  5. G

    My Advice: Stay Strong

    After managing my mom's ALS for 3 years, my advice is to stay strong and do not dwell. There are so many decisions that you absolutely ARE NOT going to get every one of them right. Yes, you might do something to hurt your PALS. I dozed off one evening and awoke early the next morning to...
  6. D

    Myths about hospice care

    Myth No. 1: Hospice care is only intermittent. The truth: There are multiple instances of PALS who have needed and received 8, 16, or even 20 hours per day of in-home nursing shift care. Unless a patient’s insurance plan clearly and specifically limits it, there is no limit to the amount of...
    • Dave K
    • Thread
    • age bed cals clothes equipment exercise fatigue headaches health hospice hours insurance life mobility positioning research sleep symptoms therapy tracheostomy transfers
    • Replies: 87
    • Forum: General discussion about ALS/MND
  7. K

    Not sure whether it is ALS

    Hello all, I have a friend named Mike who met with an accident 3 months ago. He had minor head injury and was temporarily paralyzed for 1 month. After a bed rest for 1 month he had great improvement in his health. Recently he has difficulty in lifting things. He is not even able to lift a pen...
    • KathyNam
    • Thread
    • als als? bed blog friend health improvement life muscle muscle weakness paralyzed scared swallowing symptoms symptoms of als weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  8. S

    toileting slings

    I just wrote a long post about toileting slings and lost it. Briefly, I need to purchase a sling to use when helping my PALS with toileting and daily transfers. He can no longer help me when moving from chair to chair, chair to bed, or chair to toilet. I purchased two slings and both hurt him...
    • sunandsea
    • Thread
    • advice back bed chair lift muscles reading research sling toileting transfers work
    • Replies: 4
    • Forum: Current caregivers
  9. R

    Thank You

    First - I have read all of the important documents at the top of this forum. I am extremely appreciative to anyone who takes the time to read and respond and I wish everyone on here the very best. I am going to outline my symptoms, testing, and stats simply to make this quick and easy for...
    • rhlove24
    • Thread
    • ability atrophy back bed diagnosed diagnosis documents emg female headache headaches immediately lyme mnd mri myasthenia gravis nausea neurologist night questions scared shoulder stats symptoms testing tongue twitching ultrasound unsure urgent vision weakness work young
    • Replies: 10
    • Forum: Could this be ALS?
  10. O

    What are the symptoms that indicate need for a bipap?

    I'm having a problem with elevated heart rate. It's usually okay in the morning but gets up to 95 to 99 in the evening. My PCP has increased my B/P medication, and this has helped a little. The only times I am short of breath is when I am exerting myself--getting in and out of bed, getting...
    • old dog
    • Thread
    • als bed bipap breathing clinic finger heart information night oximeter problem shortness of breath sleep symptoms testing work
    • Replies: 4
    • Forum: Primary lateral sclerosis
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