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  1. KimT

    Vans - New or Used

    I've been shopping vans. Various people drive me around so I want something 2014 or later and I need navigation. I've pretty much narrowed it down to the Toyota Sienna with the VMi automatic, in floor. Fred is 6'4" and I'm a Honda or Toyota gal. I've been working with Mobility Works and new...
  2. Duker52

    Anxiety

    Do any other PALS experience anxiety at night? This past week I have found myself getting very anxious at night. It is not about anything in particular. Although last night I freaked out because I realized that the only way I can get to a sitting position on the side of the bed is with help...
  3. S

    Hospital Bed

    What size sheets are needed for a hospital bed, regular twin or extra long twin?
  4. Nuts

    Not Feeling...

    It's been some time since I've been able to make much of a post. I think of things I'd like to share, but then I just can't. What's that about? What is this part of the rollercoaster that leaves me not feeling. I think. I respond. I plan. But I don't seem to be able to feel. This past...
  5. C

    Terrible back and hip pain from ALS?

    Trying to find out if this pain I'm having is from ALS or? Every single night I go to sleep I wake during the night and in the morning with terrible pain in my right hip and lower back. If I try to move, even an inch attempting to turn over it hurts so bad and is nearly impossible, I just...
  6. tripete

    Sleeping and Breathing

    For the last week I am unable to sleep very much because even with my Bipap on I cant get breath lying down. My Bipap is adjusted to the "highest" setting according to the therapist. I do have an adjustable bed but have never been a person who can sleep sitting up or on my back. So I have it...
  7. B

    Please help me

    Hi there I'm a 24 yo female living in Glasgow Scotland, I feel that looking back maybe my right hand hasn't been as strong as the other hand though this all started around 5 days ago I was on nightshift (I'm a critical care nurse) and when I was writing up my notes i noticed I had a really sore...
  8. J

    This beast is killing my brother

    I don't write here much but am one that feels like I wouldn't be able to mentally get through this horrible progression of ALS without the people here. Mike is 47. He's my little brother, single with 2 young kids. I happen to be single with 2 grown children and live nearby so I am his main...
  9. M

    Sleeping Comfortably

    My fvc drops 25% when I lay down and I can't keep myself from falling over sideways (no matter how many bolsters) when propped up. I considered a medical bed, but after several nights in hospital falling to side, I finally got an electric Lazyboy instead. It has been such a godsend. I got one...
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