I've been shopping vans. Various people drive me around so I want something 2014 or later and I need navigation. I've pretty much narrowed it down to the Toyota Sienna with the VMi automatic, in floor. Fred is 6'4" and I'm a Honda or Toyota gal.
I've been working with Mobility Works and new...
Do any other PALS experience anxiety at night? This past week I have found myself getting very anxious at night. It is not about anything in particular. Although last night I freaked out because I realized that the only way I can get to a sitting position on the side of the bed is with help...
It's been some time since I've been able to make much of a post. I think of things I'd like to share, but then I just can't. What's that about?
What is this part of the rollercoaster that leaves me not feeling. I think. I respond. I plan. But I don't seem to be able to feel.
This past...
Trying to find out if this pain I'm having is from ALS or? Every single night I go to sleep I wake during the night and in the morning with terrible pain in my right hip and lower back. If I try to move, even an inch attempting to turn over it hurts so bad and is nearly impossible, I just...
For the last week I am unable to sleep very much because even with my Bipap on I cant get breath lying down. My Bipap is adjusted to the "highest" setting according to the therapist.
I do have an adjustable bed but have never been a person who can sleep sitting up or on my back. So I have it...
Hi there I'm a 24 yo female living in Glasgow Scotland, I feel that looking back maybe my right hand hasn't been as strong as the other hand though this all started around 5 days ago I was on nightshift (I'm a critical care nurse) and when I was writing up my notes i noticed I had a really sore...
I don't write here much but am one that feels like I wouldn't be able to mentally get through this horrible progression of ALS without the people here. Mike is 47. He's my little brother, single with 2 young kids. I happen to be single with 2 grown children and live nearby so I am his main...
als
anger
bed
brother
caregiver
children
crying
early
eyes
feeding
feeding tube
insurance
kids
life
life insurance
meds
money
progression
sad
twitching
vent
young
My fvc drops 25% when I lay down and I can't keep myself from falling over sideways (no matter how many bolsters) when propped up. I considered a medical bed, but after several nights in hospital falling to side, I finally got an electric Lazyboy instead. It has been such a godsend. I got one...