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  1. C

    Lost Dazed and Confused

    Hubby was diagnosed in Apr 2018. Had an accident in December and is no longer walking. Got the flu right after Christmas and was sicker than anything for 2 weeks. Took him to Dr. on Monday no fever, no HBP, said he was feeling good. Got him home from Dr. (we live almost 150 miles from VA)...
  2. vickim

    Funnies for Frankb

    Riddle: What is the worst vegetable to have on a ship? Answer: A leek(leak). Riddle: Why weren't the tennis players allowed in the restaurant? Answer: Because they make too much raquet. Riddle: What did Sir Lancelot wear to bed? Answer: A knight gown! Riddle: How do monkeys make toast...
  3. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
  4. C

    Hesitant To Post But Very Concerned

    I promised myself I wouldn't post here, but I caved to my stress over these symptoms. 42 year old Male. Initially I noticed a fine tremor in my left hand and feeling of internal tremor and starting having concerns over Parkinson's. In early November I started developing twitches in my legs...
  5. K

    Trouble with Sentry 1400 Low Air Loss/ Alternating Air Mattress

    Hi all, hoping someone can help with our problems with the alternating air mattress. Just had this delivered from the ALS closet on Thursday. First two nights, she finally slept till 5am, instead of 2am. That was good. Last night she slept badly. But the rest of it is a disaster. She is so...
  6. M

    A delayed introduction

    Hello All, I want to first say thank you for taking the time to read this post. I have avoided posting here for about 1 year but due to changes recently I have decided, still with some hesitation, to post. I was going to write more of my history but I do not want to take up your time any more...
  7. D

    Sleep Number Bed

    I am having some difficulty getting out of bed. Has anyone tried a Sleep Number bed instead of a hospital bed?
  8. P

    Concerned about ALS

    Good Afternoon, I have spent plenty of time reading on this board and trying to find answers to all the questions that I have. A lot of my questions have been answered, but I still have a few doubts. I am hoping that you guys can help me answer some of those. I have been experiencing symptoms...
  9. C

    Digestive issues help-baclofen

    Over 2 years into this disease, and one of my husband’s big problems has been abdominal cramping, bloating, diarrhea, constipation- you name it. Hospice has recommended everything you can name. Not much helped. Each day in mid-afternoon, he would get abdominal cramps and just feel awful. He...
  10. P

    Symptoms need further exploring?

    So I've had a slew of variety of symptoms over the years first being on and off all over muscle twitching. The started about two years ago and subsided probably in a matter of a couple of days. Always seems to come and go. I was just seeing by to neurologist for headaches and some other...
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