bipap

  1. lgelb

    Arimoclomol trial now recruiting

    List of sites here Must be within 18 months of diagnosis, have an FRS of at least 35 and erect SVC% predicted equal to or above 80% at screening, and not use BiPAP more than 2 hours while awake. The trial recruitment page is not as clear as the NIH entry on those criteria.
  2. Doglady

    New-ish Diagnosis

    Hi- I’m new here and was diagnosed 4 months ago. My symptoms started a year earlier! Started with falls then foot drop. Also cramps and fasiculations. It was terrible at first but I’m adjusting now. My ALS clinic is great and the local ALS Association couldn’t be more helpful. I’m on Riluzole...
    • Doglady
    • Thread
    • afo bipap clinic cramps diagnosed diagnosis foot foot drop helpful new here night riluzole symptoms walker
    • Replies: 12
    • Forum: Newly diagnosed
  3. L

    Biking again!

    My dear friend has been in ICU for roughly two months as we negotiate all the issues with finding care and housing for him, but we are almost there. He has been understandably depressed, but hesitant to try new things to help improve his mood. He has lost the ability to use his hands and lower...
    • Libbyc
    • Thread
    • ability bed bipap depressed eye foot friend happiness hours housing symptoms wanted
    • Replies: 5
    • Forum: Stories of hope
  4. I

    How to change Bipap settings as for the disease progress?

    Dear PALS, hope you the bests. I started Bipap 1 year ago for my patient with below settings: mode: ST IPAP: 12.0 EPAP: 5.0 IBR: on Target pt Rate: 14 Trigger: high (i dont know what is this) Cycle: Med (i dont know what is this) Ti max: 2.0 sec (i dont know what is this) Ti min: 0.3 sec...
    • iniran
    • Thread
    • bipap breathing helpful hope please help please help me pressure shortness of breath
    • Replies: 4
    • Forum: People with ALS (PALS)
  5. lgelb

    Multi-center trial now recruiting worldwide

    The aim of this trial is to test a heart failure drug (levosimendan) already on the market to confirm an earlier study suggesting respiratory impairment could be delayed. It's an oral capsule, the trial is placebo-controlled, and you cannot be on BiPAP.
  6. Clearwater AL

    BiPap for headaches.

    I use my BiPap at night. I use the nose piece one, not full mask. I've been getting headaches during the day. Had a bad one yesterday. Somewhere I read in an old thread or somewhere that a BiPap will help relieve headaches. Yesterday I was ready to try anything and I remembered reading that...
  7. wishmobbing

    Antifog for full-face mask?

    My PALS a mask that just covers nose and mouth will give him a pressure sore on the bridge of his nose if he wears it too long. So he wears a full-face mask almost all the time. That only works without his glasses. He has a humidifier on his bipap or his mouth would become a near desert. So...
  8. M

    My PALS is getting a cold-help!

    My husband seems to be coming down with a cold and I have no idea what to do. This is the first illness he has gotten since diagnosis a year ago. He is on a feeding tube and a bipap at night (12-14 hours). Last time it was tested his breathing was around 50% (don't have raw numbers). He has a...
    • MVFinVA
    • Thread
    • advice bipap breathing cold cough assist diagnosis exercise feeding feeding tube ftd help! hours night nose pals scared
    • Replies: 6
    • Forum: General discussion about ALS/MND
  9. A

    choking spells and bipap

    this is happening more frequently. Our strategy is to remove bipap, it makes it impossible for me to clear anything from throat, and tip my chair forward until we can spit out or suction the saliva and gunk. Laurie wrote this on another thread. ote: If someone is gasping for air on an ongoing...
  10. B

    Breathing

    I have a question concerning breathing...when you decide not to vent what happens next. What do they do to keep you from grasping for breath. How long can you go just using the bipap.
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