bipap

  1. A

    new bipap issue at night

    I use a AVAP machine at night and during naps. It works extremely wellwell and is quite comfortable. But lately I have been waking up at night and it feels like suddenly my lungs can't handle the volume of air. This is quite uncomfortable and results in the extra air forcing my mouth open to...
  2. T

    Is this the end??

    Hi - My name is Michelle and my sister was diagnosed with ALS April 2015. She seems to have got it pretty bad and drawn out. At first it was just her tripping a lot, then she would just fall and couldn't get up, couldn't get off the toilet or out of bed without help. As it got worst and worst...
    • tiabye
    • Thread
    • age als bed bipap bipap 24/7 brother caregiver diagnosed heart hours ice life oxygen quality of life work
    • Replies: 9
    • Forum: Current caregivers
  3. M

    Newly diagnosed, need advice

    My husband was diagnosed with ALS Jan 2018, onset symptoms started Feb 2017. He first had cramping in right calf muscle then foot drop. His right leg started wasting away shortly after and he lost 40-50lbs within months. He began to have trouble breathing in Aug 2017 just 7 months after onset...
    • Maryanner20
    • Thread
    • advice als bipap breathing caregivers cough assist cramping diagnosed foot foot drop muscle newly diagnosed night onset rapid progression stop working symptoms walker wheelchair
    • Replies: 9
    • Forum: Newly diagnosed
  4. I

    Does ability to breathe occur in PBP

    I was just diagnosed with Progressive Bulbar Palsy about a month ago. Was told by the ALS Clinic that my limbs were good and might remain that way for another year or two. Within this last month, though, I seem to have more of a problem breathing. This is more when I try to breathe through my...
  5. T

    I need to know the signs

    My sister was diagnosed with ALS 4/2015. She is at the end and I need to know the signs and what to look for. I need to know how much more time I have left with her. She is currently on a bipap machine, she cannot breath on her own anymore. That has been since August 2017. Monday her chest was...
    • tiabye
    • Thread
    • als bipap communication coughing diagnosed end of life eyes frustrated life night respiratory signs of death
    • Replies: 13
    • Forum: Current caregivers
  6. S

    Trouble using BiPap

    I’m short of breath, so I was given a BiPap. It terrifies me. I often breath out of my mouth, so they gave me a full face mask. I’m claustrophobic, so I panic. I’vebeentrying To force myself to use it, but I can’t seem to last more than 5 minutes. Have any of you had this problem? How did...
  7. M

    My father

    My father passed away last Wednesday surrounded by his family. Despite all the misery that ALS inflicted on his body, his last few days were very peaceful. His condition took a drastic downturn in November, after a couple of cycles on Edaravone. We will never know if this was a cause of his...
    • Miav123
    • Thread
    • als bed bipap christmas coughing dad decline edaravone family father feeding fell questions support transfers walker wheelchair
    • Replies: 15
    • Forum: In memory of
  8. dkcarl62

    Sleeping all the time

    Greetings friends, Asking for your input for a increasing concerning problem. I can't stay awake. I fall asleep while getting my nails clipped, taking a tube feeding, in the middle of writing an email, in the middle of doing exercises. It doesn't matter if I just woke up, I could go right...
  9. worrieddaughter77

    beginning of respiratory failure?

    I can't handle it... My dad has been coughing for about 2 weeks now. He starts at about 7pm and it continues on until about 2am. It's so difficult for him and the rest of us to sleep. And I just don't know what to do!!! It seems that the reason for his cough is a partial collapse of his left...
  10. T

    New on Site

    Hello I have been reading several threads on the site since my friend was diagnosed with ALS 5 months ago. First I want to say this site has been a wealth of information and I am grateful for all here who answer questions. I was hoping to get some information on the Bipap vs the trilogy. My...
    • terris
    • Thread
    • als bipap breathing diagnosed diagnosis friend information oxygen questions reading respiratory sleep travel trilogy worried
    • Replies: 0
    • Forum: Newly diagnosed
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