bucket challenge

  1. J

    team minzey

    When my granddaughter walked in the ALS walk in Wynot N.D her team came in the top ten. She has kept that going with the ice bucket challenge. When she asked me to post what the Ice bucket challenge meant to me This is what I posted for her web page. When we first went to the ALS clinic in...
    • judylyne
    • Thread
    • als bucket challenge clinic cost cure family fear free grief hope ice ice bucket challenge worry
    • Replies: 0
    • Forum: Past caregivers
  2. S

    Worried

    Hi there, so much good has came out from the Ice Bucket Challenge as its raising so much awareness. I have always been a worried person about things and I think when something is wrong then I think the worst and end up on google researching symptoms, which is the worst thing too do. I am just...
    • scotland1
    • Thread
    • awareness bucket challenge burning driving finger ice ice bucket challenge mnd problems symptoms thumb twitching worried wrist wrong
    • Replies: 24
    • Forum: Could this be ALS?
  3. E

    Canadian Newby with PLS

    Hi everyone, I've been reading some of the posts here and can relate to the frustrations with this disease. On one hand we are lucky we don't have ALS but we have a longer life to live with poor quality and lack of independence. On top of that we are at the bottom for any clinical trials. I read...
    • Elliemae
    • Thread
    • als bucket challenge clinical hope ice ice bucket challenge lead life money pls reading volunteers website worldwide
    • Replies: 30
    • Forum: Primary lateral sclerosis
  4. Music67

    Another day in the life. . .

    On Wednesday I attended a Seattle hospital ALS clinic. I was duplicating studies that the VA already does on me but this hospital has a standing IVIG offer which I was hoping to initiate. However my assigned nurologist who made the offer didn't show up so I had to have my concern passed to her...
    • Music67
    • Thread
    • als ankle arm bucket challenge clinic family heart ice bucket challenge ivig life neurologist paralyzed test testing voice wheelchairs
    • Replies: 6
    • Forum: General discussion about ALS/MND
  5. R

    The true meaning of the ‘Ice Bucket Challenge’

    An interesting news story from a Topeka, Kansas news station: The true meaning of the ?Ice Bucket Challenge? | Kansas First News
  6. S

    ALS Ice Bucket Challenge

    Dads doctor has been great to work with through all of the difficulities of als. He has challenged one of his partners and both of them will be doing the als ice bucket challenge next Tuesday in the parking lot of there office at noon and posted a short video about it on facebook. They have...
    • Snowman78
    • Thread
    • als bucket challenge challeng ice ice bucket challenge support video work
    • Replies: 8
    • Forum: Current caregivers
  7. L

    Best place to donate?

    I thought I would post this in the DIHALS section because it is likely to get the most views. I have seen a number of places to donate for ALS support due to the ice bucket challenge and was wondering where you would recommend sending donations? Where can we make sure the funds reach the...
    • lurker
    • Thread
    • bucket challenge dihals donations ice ice bucket challenge support
    • Replies: 12
    • Forum: Could this be ALS?
  8. S

    Whey Protein+BCAA's

    Hi all, First, I would like to send peace and love out to those of you coping with ALS. Personally, my uncle has been affected with motor neuron disease (currently has aspiration pneumonia). I am happy so many have been made aware of ALS/MND through the "Ice Bucket Challenge," even if not all...
    • scl025
    • Thread
    • als als? bucket challenge coping ice ice bucket challenge information lead love mnd motor neuron disease muscle nih nutrition onset pneumonia stress supplement supplements video wanted
    • Replies: 2
    • Forum: General discussion about ALS/MND
  9. affected

    Ice Bucket Challenge Australia

    OK I did it! The television crew came, the newspaper came. 5 of us did the challenge, and another few people there to support. http://youtu.be/698-Y18H0sg
  10. G

    Rename website?!?

    With the attention worldwide should the website be changed from ALS to "that disease with the ice bucket challenge" ?
    • GregK
    • Thread
    • als bucket challenge ice ice bucket challenge website worldwide
    • Replies: 2
    • Forum: Off topic everything
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