I can't help it... I don't post in the DIHALS Forum anymore but I had to put it someplace. :-)
A member posted this reply (in part) to a DIHALS’er…
“And if I sound snarky, my docs gave me a little more time due to slow progression and I feel like a million bucks. You are told you don't have a...
This from the ALS association about funds dispersed
The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS - The ALS Association
It looks like they are funding work on important issues and there...
Hello everyone, my name is Travis, I am 26 year old, an active Brazilian jiu-jitsu competitor and weight lifter... I didn't realize anything about als until I looked up the ice bucket challenge and wow I was so shocked/scared about it.. I have donated and plan on continuing to do so and I...
I know we all say 'why me' but I this just boggles my mind. I was literally 'just a guy' on the internet when the Ice Bucket Challenge first started. I learned a little bit about ALS, thought "wow what an awful thing" and went about my life like everyone else. Then the symptoms began...From the...
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Foot Atrophy Questions
Hi all
I do not want to take too much of your time as I know it is valuable.
Like everyone else on here, I have some muscle twitching, and Dr. Google brought me to ALS and with the ALS Ice Bucket challenge it has brought my already high health anxiety, to brand new...
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Good evening folks,
I've done a good amount of searching through this site and don't want to waste too much of anybody's time as I know most people on here are dealing with this very serious illness etc.
I just wanted to know if any of you knew any rates or general stats on people getting ALS...
I was diagnosed in Feb. and have had such an outpouring of love and concern. People are flying out walk with me in the local walk next month. My wife's fear is that when our granddaughters get there and see some pALS that are farther along with vents and feeding tubes.
They know Papa has been...
Hello to all,
I first want to start my message by saying I am extremely understanding of the patience you all have with this forum. I can only imagine how many of these "types" of requests you've been getting due to all the heavy media coverage on ALS/the ice bucket challenge.
I just want to...
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I was diagnosed last Monday with ALS. It took a year of tests before my neurologist finally said he didn't have any more to run and sent me to the ALS clinic. I have 6 kids. 19,16,13,7,5, and 3. My mind races with all the things I want to and need to do. I'm 38 and had plans of being a crazy old...
Heys guys! I've been dealing with extreme anxiety for the past year or so and it's been getting a lot worse due to my recent "symptoms". It started about two months ago, my left thigh near crotch would start twitching uncontrollably every ten minutes or so. I also experienced sharp pains in my...