bucket challenge

  1. affected

    Lost a friend

    A couple of months after diagnosis Chris met another local PALS through fb. He and his wife came for morning tea to meet us. Chris used the food processor to mix up the last batch of scones he ever made (he was famous for his scones as a cafe owner). He couldn't manage to eat a scone himself...
    • affected
    • Thread
    • age arm back breathing breathing issues bucket challenge camp death diagnosis early eye family food free friend health ice ice bucket challenge life night palliative care peg wanted
    • Replies: 20
    • Forum: In memory of
  2. krnNdug

    Yosemite, Vegas, Death Valley, PCH, Morro Bay vacation

    We just finished a fun, but very tiring, vacation. I always wanted to take my wife to Yosemite, I wish it didn't take ALS to get us there, but it did, finally. My sister and her family joined us, our kids and grandkids for a terrific trip. It can be a challenge to do what each of 17 people want...
    • krnNdug
    • Thread
    • als angel arrested bucket challenge chair death driving family foot ice ice bucket challenge kids life power power chair problem sad trip vacation van video wanted work
    • Replies: 10
    • Forum: Stories of hope
  3. B

    How the Ice Bucket money was used

    Thought this news might be interesting to some. How the money from the ?Ice Bucket Challenge? was actually spent
  4. Nuts

    Traveling with ALS

    OK, riddle me this, Batman: how can a hotel be "oversold" when you have a non-refundable deposit on a room with a barrier free shower? Oh, it sounded nice: You've been upgraded to Executive class at our higher-end hotel right around the corner. Oh...let me check...yes, they have a barrier free...
    • Nuts
    • Thread
    • als bucket challenge chair driving free ice ice bucket challenge shower
    • Replies: 45
    • Forum: Rants and raves
  5. G

    Concerning Symptoms

    Hey Yall! Really hope I'm not supposed to be here, but I have a few questions. Little over a year ago I started getting twitches all throughout my body. Shortly after, my right leg began to feel funny. At about the same time, my right foot started getting these really fast twitches and cramp...
    • GregW92
    • Thread
    • bucket challenge foot hope ice ice bucket challenge info life mad movement muscles night pain questions running stiffness symptom symptoms twitches twitching wrist
    • Replies: 3
    • Forum: Could this be ALS?
  6. canmark

    Local News Anchor Announces ALS Diagnosis and Retires in Touching Broadcast

    TIME: Local News Anchor Announces ALS Diagnosis and Retires in Touching Broadcast
  7. krnNdug

    ASU documentary on ALS & IBC

    I was nominated by the local ALSA chapter to be the subject of a documentary on fundraising and the Ice Bucket Challenge and ALS for the ASU School of Journalism. The students did a great job considering the subject patient could break many cameras and mirrors. I would love to get your comments...
  8. Lilacs53

    Got a email from Winning The Fight

    I'm not sure about it and would like to know what you all think about it. Here it is... December 16, 2014 Dear ALS Fighters and Families: There is an opportunity for us to expand WFND’S current therapy program for PALS (People with ALS) and to totally stop ALS progression. Although...
    • Lilacs53
    • Thread
    • als bucket challenge clinical clinical trial cure deanna death donations drug trials dying early health hope ice bucket challenge life metabolism neurology problem progression research supplement test therapy treatment trial wfnd work
    • Replies: 16
    • Forum: General discussion about ALS/MND
  9. S

    ALS is a B word!

    I'm usually very positive, but finding it harder and harder lately! ALS has stolen so much from me already and I'm still just at the beginning! I lost one of my jobs because insurance won't cove me driving patients if I have ALS. My other job is threatening to let me go because I'm moving...
    • slopokahontas
    • Thread
    • als bucket challenge choke cramps driving foot ice ice bucket challenge insurance kids life mad medical muscle pain ramp trip
    • Replies: 15
    • Forum: Rants and raves
  10. F

    Protein instability suggested as cause of ALS

    Protein instability suggested as cause of ALS - Medical News Today Protein instability suggested as cause of ALS A joint research team comprised of scientists from The Scripps Research Institute and Lawrence Berkeley National Laboratory - both in California - have suggested a cause of...
    • FrenchFries
    • Thread
    • ability age als back breathing bucket challenge cdc data death drugs early ice ice bucket challenge lou gehrig's disease media medical muscles onset research sod1 sporadic support symptoms
    • Replies: 3
    • Forum: Research and trials
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