First, let me say at the moment we are blessed and have little to complain about. Brian wears orthodics and does not walk more than say about a block without rest. Standing is hard on him for sure. He uses a bath chair to do things like wash his hair in the shower because he gets "rubbery" legs...
Hello all, my brother was diagnosed 2 weeks ago with ALS. He's 40 with a pregnant wife and a toddler.
His diagnosis took about 15 months from first symptom - a fall.
He now has a finger that doesn't work, an arm muscle that doesn't work, some weakness, twitches, and some spasticity. He also has...
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The first month was hell and then I was doing okay....I've fallen into a routine and sort of gotten down to business....I might have a quick crying jag every week or so but its over in a few minutes and I am back to being okay...but this past week has been horrible, I'm crying multiple times a...
I am getting so angry and resentful. I am mad that I do work while my brother gets to have nice visits with my mom. Mom won't let my brother or uncle help her with dressing, bathing or toileting....okay I get that but she won't let my aunt who lives 2 minutes away help her either, she will only...
Hi everyone. I would greatly appreciate your advice. Four months ago out of the blue, the index finger on my dominant hand started moving On its own. It started pulling outward towards my thumb. Only happened three times the first day and I wasn't very concerned. By the weekend I was having...
Hi,
I find myself here because honestly, I am unsure if the doctor I saw was really offering me any good information. Not to criticize the doctor I saw, just that he was not my PCP who is on vacation.
I just visited my doctors practice and saw the on-call physician. Not my normal PCP. I...
3 months ago I had a witnessed grand mal seizure. I thought it was an isolated episode, and didn't think much of it until I continued to have blackouts and had to be referred to a neurologist.
He prescribed me seizure meds but I haven't been taking them because I'm scared of the side...
Hi!
I apologize for my bad english, I´m from Ukraine but living about 14 years in Finland.
I´m 24 and my healt problem start last year in spring..
I was moving together with my men and I starting feel dizziness and it never stop, just when I move or do something I feel uncomfortable
like i...
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Hi fellow CALS,
My name is Ariel. It's been many years since I've posted on this forum but our family has determined we need some help form those that might have more experience than us.
My mother has had ALS for 10 years now. She's completely paralyzed except for eyes and mouth (which have...
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ventilator
Some days are shit. And sometimes you get a bunch of them in a row. And sometimes it gets too much, and there is crying and gnashing of teeth.
I saw my psychologist. I said "I'm not coping very well".
She said:
What kind of person deals with this without getting upset?
The only way through...