crying

  1. Chumpy

    Nuedexta info please

    Any information on this would be great! PAL has Bulbar ALS, but not the laughing and crying. We've heard good things on the bulbar side, but concerns on side effects! Please share your experience with this medicine! Speech is almost gone, swallowing barely, FVC 40% so diaphragm is getting...
  2. starente15

    The new normal

    Hi friends! I guess I'm settling into the new normal these days. Some days good, others bad. It seems a song, a TV show, something someone says, pretty much anything can cause the bad. Last night I went for a run after work and started feeling out of breath. I immediately thought of how my...
    • starente15
    • Thread
    • anxiety back bed bipap crying father hope immediately night reading work
    • Replies: 8
    • Forum: Past caregivers
  3. D

    Need Your Thoughts and Guidance

    Hi, first off I want to know that I admire all of you battling this disease and those of you who are or have cared for a loved one. I’m a 49 y/o male, muscular and used to be very athletic. I have read the stickies and apologize for the length of this post. This started in Aug 2014 with...
    • Dane67
    • Thread
    • als atrophy bfs burning choking clinical cramping cramps crying early emg fasciculations hope hyperreflexia increase mnd muscle muscles neurologist pain sleep spasms symptoms tests thumb weakness wrist
    • Replies: 7
    • Forum: Could this be ALS?
  4. M

    Work up or stop worrying?

    So, here's my story. In the last couple of months, maybe a bit longer, I've had some strange symptoms. Some of them coincide with the start of a new medication in clinical trails for binge eating disorder, specifically a Norepinephrine-Dopamine Reuptake Inhibitor (NDRI). Some of them occurred...
    • MissyMe
    • Thread
    • ankle back book clinical crying dry mouth eating fasciculations ice medical medicine movement mri neurology norepinephrine sleep story stress stroke swallowing symptoms twitching weakness work worry
    • Replies: 5
    • Forum: Could this be ALS?
  5. KimT

    Pain

    How many of you deal with constant pain? Muscle spasms, sciatica, and shooting pain in my trunk area are all getting much worse. The strange thing is that I can still walk, bend, and have good range of motion. Laughing or crying makes the pain in my back and ribs hurt more and it becomes...
  6. SLAUGHTER1555

    At A Crossroad And Broken

    Hello Cals and Pals that may be reading its been awhile since ive been here for a lack of a better word hope everyone has been well. So much has happened since i was here last, i wish i could say for the best but its all the opposite. My Pals has had some slight physical changes but most...
  7. K

    A 6 month journey: Is this bulbar MND?

    Hello everyone. Firstly I would like to thank you for this forum which gives hope to those who are new to or awaiting anxiously for a diagnosis. Secondly I want to say how I respect all contributors who highlight the strength and positivity that people can show even in the most difficult of...
    • krl111
    • Thread
    • abdomen ability bfs bulbar christmas clinical crying diagnosis early emg fasciculations hours insomnia medical mnd muscles sleep spasms speech swallowing symptoms twitch twitches twitching weakness weight loss wrist wrong
    • Replies: 19
    • Forum: Could this be ALS?
  8. S

    How to help out?

    Hi all, My fiancé's father has been diagnosed with progressive bulbar palsy on August 2015. Since we used to live in a different country, last time we met him was December 2014, when we celebrated our engagement. We decided to move to my fiancé's home country to be with his parents as much as...
  9. D

    New here

    Hi, is stomach pain common in later stages? They have done every test and can't find any reason for the pain other than it is disease related. My PAL is 58 and she was diagnosed very late after having symptoms for a long time. She was vented and now has a trache. During the past week she hasn't...
  10. starente15

    Every day is a struggle

    This Saturday will be 10 weeks since my father's passing. Every day I shed at least a few tears as something I hear or see sparks a memory. Nighttime is the worst and I have a lot of trouble sleeping because I flash back to dark times. I'm trying to find a new routine while I'm without a...
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