data

  1. indigosd

    National ALS Registry Timeline

    I just got this today from the ALSA. It seems to me that it is taking a long time to get anywhere. :-( National ALS Registry Timeline (as of February, 2010) October – December 2009 • Launch National ALS Registry website: Now available on the CDC website at CDC - Amyotrophic Lateral...
    • indigosd
    • Thread
    • age als als registry alsa alsa registry awareness cdc data information media medicare questions research timeline veterans website
    • Replies: 3
    • Forum: Research and trials
  2. Just J

    Help needed regarding PLS progression

    Hello everyone. I was wondering if you all would help me out by providing some general information. I am looking for data on the progression of PLS. Understanding it is different for everyone. If you could please provide a synopsis from symptoms onset to current I would really appreciate it. If...
    • Just J
    • Thread
    • als baclofen balance data diagnosed hsp information lyme lyme disease medical neurologist night onset pls power progression symptoms test treatment walker wheelchair
    • Replies: 27
    • Forum: Primary lateral sclerosis
  3. BethU

    why don't researchers care about toxins?

    Not that I am one of the amalgam nuts ... to the contrary, I think most of that is a bunch of hooey ... but it is my understanding that where science currently stands on the cause of ALS is that it is three genes behaving badly along with some environmental triggers. I signed the forms to...
    • BethU
    • Thread
    • als amalgam data drugs family medical research running toxins
    • Replies: 13
    • Forum: Research and trials
  4. nishant

    Machine Translates Thoughts into Speech in Real Time

    Read more here From Gizmodo: The Neuralynx System translates thoughts into speech. It connects to the neurons, sending signals wirelessly to a laptop, which translates the brain activity into spoken English. It's not science fiction: They tried it with a paralyzed 26-year-old and it works...
    • nishant
    • Thread
    • als boston brain communication data digital health improvement increase paralyzed research software speech
    • Replies: 14
    • Forum: Research and trials
  5. C

    Symposium in Berlin.

    Many of you might have read this but for those who haven't ....... ALS TDI Presents Latest Data at International Symposium in Berlin 12/17/2009 This December 8-10, nearly 900 researchers, neurologists, clinicians and others involved in the care of people living with ALS gathered in Berlin...
    • Cherry
    • Thread
    • advice candida ceftriaxone clinical conference data drugs early genetic immune mnd mnd/als movement neurology onset palliative care progression questions robert sporadic support therapy treatment
    • Replies: 0
    • Forum: General discussion about ALS/MND
  6. D

    News on SB-509

    Pretty interesting article: PharmaLive: Sangamo BioSciences Announces Presentation of Preliminary Data From Phase 2 Study of SB-509 at International ALS Symposium
  7. Zaphoon

    UMN Exacerbation

    I'm just going to come right out and say it... I believe PLS (and umn stuff in general) exacerbates. I'm not ready to say there is remission, just exacerbation. This stuff has been ongoing all of the time! There has not been a day when the muscles have not been tight, crampy and twitchy but...
  8. Ellamay

    data base error

    I seem to be getting a database error when I try to access my blog. I can go in and add to my blog but then it gives me a database error. Please let me know when this will be working again . thanks
  9. BethU

    ALS National (US) Registry website

    Hi, guys ... apparently there are two national registries ... or am I completely "Lost" again?" The one for vets and the one for everyone in US with ALS? Anyway ... received this notice from ALSA. In order to receive updates from ALSA about the progress of the registry and when we can begin...
    • BethU
    • Thread
    • advocacy advocate age als als registry als research alsa cdc clinical data free helpful ice information questions research secure support website
    • Replies: 13
    • Forum: General discussion about ALS/MND
  10. BethU

    Als registry set to go in 2010

    (Apparently the funding bill went through?) I'm sure others received this e-mail from MDA, but for those who didn't: Government announces plans for national ALS Registry in 2010 The federal government has released preliminary details about the new National ALS Registry, which will be launched...
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