data

  1. David

    A Blockbuster Approach to Funding ALS Research

    Source: ALS Society of Canada Date: April 1st, 2009 Title: A Blockbuster Approach to Funding ALS Research Two seemingly disparate strands – a runaway blockbuster and a clinical trial of a promising new therapeutic approach to a fatal neuromuscular disease – are being woven together...
    • David
    • Thread
    • als als research bipolar book cals canadians clinical clinical trial cure data death diagnosis early family health hope information life lithium love medical muscles night professor progression research riluzole stages story support treatments trial women work worldwide
    • Replies: 3
    • Forum: General discussion about ALS/MND
  2. brendapals

    questions about MaxGXL?

    Hello dear friends, Had a fellow come out to our house today to "sell us" on something called MaxGXL. What's weird is, he was my rep who delivered my cpap machine almost 5 yrs ago! Now, I hope you all will be proud of me. He sat down and explained how traditional drs couldn't HEAL ALS...
  3. tag0620

    Probably not RMSF....update on my husband!

    Hi all, Went to the UofU infectious diseases today. The first doc did the cursory physical exam (strength test, reflexes, eyes, ears, throat, etc), then just wanted to talk, and listen, and take notes. He took our blood tests and the readings (explanations) from our MRI's and said he was going...
    • tag0620
    • Thread
    • advice atrophy back brain data decline diagnosed diagnosis digital eyes hope husband mri neurologist problems story surgery symptoms test tests update van wanted weakness
    • Replies: 15
    • Forum: Could this be ALS?
  4. David

    Lithium Trial - ALS Society of Canada

    ALS Canada is supporting a national clinical trial, which is aimed to confirm the effectiveness of lithium in slowing the progression of ALS in patients in the early stages of the disease. Patients may be included if they are within three years of their diagnosis and not already taking lithium...
    • David
    • Thread
    • als als clinics bipolar brain cals canada clinical clinical study clinical trial clinics data diagnosis early family health information lithium medical progression research stages trial work
    • Replies: 20
    • Forum: Research and trials
  5. Al

    IPLEX and the Telephone Game: The difficulty in separating myth from reality on the i

    IPLEX and the Telephone Game: The difficulty in separating myth from reality on the internet First Published on: 08 January 2009 Many of us remember 'the telephone game'. In this, a short story is started and then whispered to a second person, who then whispers it to a third and so on down the...
    • Al
    • Thread
    • age als als clinics als research breathing children clinical clinical trial clinics cure data early health hearing hiv lithium medicine mnd neurology power problems progression relative research story support swallowing treatments video wanted website work
    • Replies: 14
    • Forum: General discussion about ALS/MND
  6. Danijela

    Rilutek and male fertility

    I was wondering if anyone can provide any leads on Rilutek and its impact on male fertility. The only studies I come across are about male and female rats (and impaired fertility) but no definite data on humans. Thanks.
  7. Danijela

    Diagnosis, work and life

    Hi All, I am 36 years old with a partner who is 41 and has been diagnosed with ALS (upper limb onset) two weeks ago. He noticed weakness in left hand while playing bass approx 1 year ago and after a series of tests over the oncoming months he was officially diagnosed at the specialist ALS...
    • Danijela
    • Thread
    • advice als clinic clinics data diagnosed diagnosis early equipment keyboard life mnd onset support symptoms tests upper limb onset weakness work
    • Replies: 35
    • Forum: General discussion about ALS/MND
  8. Paul Wicks

    Right number of members?

    Hi guys, I'm preparing some slides for the ALS/MND Symposium in Birmingham on use of the internet by PALS and I'm trying to get some data on the different forums that are out there. According to the site stats at the bottom of the screen there are 7,000 members here but when I go through the...
  9. Paul Wicks

    New features for PLS patients

    Hi all, Just a quick note to say we've recently added a new feature for patients with PLS. Previously if you joined the ALS/PMA/PLS community and had PLS you didn't get the percentile curve backdrops that the ALS patients had. I'm pleased to say that now that we have 150+ PLS members we have...
  10. jrtu

    New to the Forum

    Hi everyone, I feel privileged, albeit unfortunate, to join such a special forum full of caring, inspiring and informative people. My diagnosis of limb onset ALS came in July and it is progressing alarming quickly. I won't go into my physical details because all of you know only too well what...
    • jrtu
    • Thread
    • als clinic data denial diagnosis hours information onset website
    • Replies: 5
    • Forum: New members
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