diagnosed

  1. M

    Lung Function Question

    My husband was diagnosed in May 2017, but we can look back and see symptoms that we didn't recognize in August 2016. He had his first ALS Clinic visit in June 2017. At that time his Forced Vital Capacity (FVC) was 3.9 and they said his lungs were great. It dropped to 3.6 in October and 3.3 in...
  2. W

    Some questions and concerns

    Hi all, First, I want to say that I have the utmost respect for the people here who are battling this awful disease and for their caregivers. I pray for a cure and peace to all of you. I think it is selfless that you give your time to a forum like this. I have been having some concerning...
    • worried1234
    • Thread
    • age als als symptoms caregivers cure diagnosed diagnosis familial fatigue female finger health heart mnd muscles questions scared shaking shortness of breath symptoms symptoms? twitching weakness work
    • Replies: 4
    • Forum: Could this be ALS?
  3. KarenNWendyn

    Why do so many doctors seem unaware of connection between foot drop. and ALS?

    This is a question recently posed by another member in another thread. I thought it would be an excellent question for discussion, so I decided to open a new thread so we could get different perspectives. I am coming at this both as a PALS who presented with foot drop and also as a physician...
    • KarenNWendyn
    • Thread
    • als als? ankle cramps diagnosed diagnosis fasciculations foot foot drop healing ice medical medicine muscle natural neurologist problem
    • Replies: 22
    • Forum: General discussion about ALS/MND
  4. M

    Link with OCD and ALS??

    My dad was diagnosed with ALS a year ago, he has respiratory onset. Although he uses a NIPPV up to 20 hours a day and needs a motorised wheelchair for anything longer than a few steps he's actually doing ok considering the prognosis last year, a year later he still can eat and drink what he...
  5. L

    My Dad Died April 9th

    It has been such a busy time and I hadn't had a chance to post earlier. He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...
    • LeslieR
    • Thread
    • avaps brother catheter dad diagnosed diagnosis dying early eyes father feeding feeding tube grace hospice life morphine music night nutrition oil pain pneumonia speech story tracheostomy trilogy ventilator
    • Replies: 12
    • Forum: In memory of
  6. G

    Just diagnosed with ALS

    Want to know what things I can do to slow progression. I play drums and guitar, the ALS so far hasn't affected that. But I noticed slurred speech around Christmas 2017. Thought that it might of been a stroke, went to the doctor all they found Prolactenoma Tumor on my pituitary.
    • GaryLee53
    • Thread
    • als christmas diagnosed progression slow progression slurred speech speech stroke
    • Replies: 27
    • Forum: Newly diagnosed
  7. S

    Husband diagnosed 2/18

    My husband was formally diagnosed with ALS in February of 2018, although he has had foot drop for over two years. We have been told his progression is slow and did get a second opinion at a highly regarded ALS center. I think we were both afraid to ask many questions about his progression but...
    • sassy
    • Thread
    • als cals diagnosed foot foot drop husband progression questions second opinion wanted
    • Replies: 13
    • Forum: Newly diagnosed
  8. R

    Traveling to Colorado - air issues

    My husband was diagnosed with ALS on December 1st and is already using Trilogy at night to help with breathing. We are traveling to Colorado and plan to spend some time in Breckinridge. We live in Arkansas are not used to high altitudes. Does anyone have any suggestions about my husband's...
  9. R

    Just Need Relief

    Hi! I honestly was very hesitant about making an account on here to just to post to this forum. I was diagnosed with generalized anxiety disorder, and I am well aware that what I am experiencing could certainly just be because of that. However, over the last few days, the thought of ALS or any...
    • rix94
    • Thread
    • allergies als anxiety back diagnosed early family fear fingers heart life muscle muscle twitches neuromuscular disorder night sleep test twitches twitching urgent work
    • Replies: 8
    • Forum: Could this be ALS?
  10. wmilo

    New to the Forum

    Hi, Folks. My name is Bill; I'm a new PALS, diagnosed in October, 2017, and also new to the forum. As I looked at some of the threads, I was impressed by the courage and compassion of the members here and wanted to introduce myself to the group. My experience started with foot drop in the...
    • wmilo
    • Thread
    • balance cals denial diagnosed diagnosis early emg foot foot drop radicava stages wanted
    • Replies: 11
    • Forum: People with ALS (PALS)
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