diagnosed

  1. C

    Gastroparesis

    Anyone with ALS also been diagnosed with gastroparesis? If so, what can you tell me about your experience, treatment and outcome. Any and all information is greatly appreciated. Thanks!
  2. K

    Still Looking for Canadians interested in Sharing their Experiences

    Hi there! My dad was diagnosed with ALS in 2016. His struggles with the Canadian Healthcare system have motivated me to do something to create change. So that he and others might be better cared for and supported. If you are a Canadian that has been diagnosed with ALS or a related condition...
  3. B

    Visiting my sister in last stages

    Hi. I am new here. My sister was diagnosed in 2011. She has been in a nursing home for the last three years. We live 6,000 miles apart. The last time I was able to visit was four years (and one college kid expenses) ago. The nursing home is very good and paid for by her disability pension...
  4. A

    Moving with ALS

    Good Morning, My mom was recently diagnosed with ALS, then a couple months later she fell and broke her hip. Right now she is in rehab but once she is out, I plan to bring here to live with me to be here caregiver. I live two states away and was wondering if anyone has any advice of...
    • AMOK
    • Thread
    • advice als caregiver diagnosed fell hip hours van wheelchair
    • Replies: 5
    • Forum: Newly diagnosed
  5. J

    SMA or ALS

    Hi everyone, first of all, english is not my native language so sorry if my words confuse you. So I have been diagnosed with a mild type of SMA for 7 years, since I was 16-17 year old. I do a check up once every 2 years, and the result is still SMA everytime. The disease first starts with my...
    • justqanh
    • Thread
    • advice als atrophy back diagnosed fasciculation fatigue neurologist onset problem progression slow progression sma symptoms test testing umn weakness worry young
    • Replies: 7
    • Forum: Could this be ALS?
  6. S

    Bulbar ALS?

    Hi people. I'm from Spain, my name is Carlos and I'm 25 years old. I'm worried because this last year i started to experience some symptoms like arthritis, tinnitus, vertigo, cognitive problems, fasciculations over the body, muscle cramps, dipsnea etc... and my worts symptom my tongue... it's...
    • Spain26lm
    • Thread
    • als als? bulbar bulbar als cramps crying diagnosed fasciculations lyme muscle problems respiratory symptoms tongue twitching worried
    • Replies: 1
    • Forum: Could this be ALS?
  7. S

    hello

    im from Tyne and Wear N.E England im a past carer of my mam(mom) she was diagnosed with Pseudo Bulbar Palsy then A.L.S in 1997 died 2000 . life is still as though im waiting for her to come home . :cry:
  8. J

    New Diagnosis

    New friends, My name is Jessi and my mother in law, Eileen, was just diagnosed with ALS about 3 weeks ago. She is a 2 time breast cancer survivor so they are unsure of whether or not her ALS is related to the radiation she underwent as a part of her cancer treatment or not. She lost total use...
    • jessiseppathompson
    • Thread
    • als arm caregiver children decline diagnosed diagnosis eating falling life meds new diagnosis progression questions shoulder treatment trip unsure walker wrong
    • Replies: 2
    • Forum: Newly diagnosed
  9. R

    Life insurance

    I'm trying to get some term life insurance, but I keep getting turned down because I have PLS. I was diagnosed back in 2007, and my progression has been slow. I'm in excellent health aside from being in a wheelchair. I had insurance with my previous job, but lost that when they closed up shop...
  10. KimT

    Advice for newly diagnosed PALS

    If you have other health issues, do your best to treat them and keep them under control. Also, keep your routine maintenance such as teeth cleaning and eye exams as long as it's possible without any undue stress to your body or mind. I knew I needed two crowns replaced. I knew it two years...
    • KimT
    • Thread
    • advice back burning chair cost diagnosed eye eye gaze eyes health hours money newly diagnosed night pain pals progression stress surgery
    • Replies: 0
    • Forum: General discussion about ALS/MND
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