equipment

  1. M

    Need advice regarding my mother's situation

    I would like to share my mother’s story with you in the hopes that I can receive advice regarding my family’s situation. This might seem like a very ‘dry’ explanation of the situation, but I assure you that there are a lot of emotions involved My aim is to give the clearest and most objective...
    • Mandarine783
    • Thread
    • advice age als breathing confused cry dad denial depressed diagnosed diagnosis equipment eyes father friend life peg planning sad story stroke support tests tracheotomy treatments wanted worry
    • Replies: 7
    • Forum: General discussion about ALS/MND
  2. H

    fysiotherapy YES it helps (in my case)

    I have no arms and legs functonality, but speaking, swallowing and breathing is no problem yet. I was diagnosed with ALS in April 2014. Since then I have FT 2x half an hour in a week. Plus several "hulpmiddelen" ( things, equipment that support and help, (cannot translate)). Now I am using a...
    • henkvrielink
    • Thread
    • als book breathing diagnosed equipment problem reading support swallowing
    • Replies: 2
    • Forum: Stories of hope
  3. swalker

    I passed my driving test

    At my last visit with the neurologist, I mentioned that I was still driving and felt safe doing so. I added that I wanted to make sure I was not fooling myself and that I actually was safe to drive. The neurologist referred me to a group of occupational therapists that specialize in evaluating...
  4. D

    New Foundation to Help PALS

    Please consider forwarding this post to any attorneys, doctors, OTs, PTs, RTs, or nurses who may be interested in volunteering for a new foundation--the ALS Action Foundation (ALSAF)--whose mission is to conduct research and promote education and awareness concerning the resources available to...
    • Dave K
    • Thread
    • als awareness cure diagnosed equipment hours life medical medical equipment nurses pals research supplement treatments work
    • Replies: 7
    • Forum: General discussion about ALS/MND
  5. D

    Myths about hospice care

    Myth No. 1: Hospice care is only intermittent. The truth: There are multiple instances of PALS who have needed and received 8, 16, or even 20 hours per day of in-home nursing shift care. Unless a patient’s insurance plan clearly and specifically limits it, there is no limit to the amount of...
    • Dave K
    • Thread
    • age bed cals clothes equipment exercise fatigue headaches health hospice hours insurance life mobility positioning research sleep symptoms therapy tracheostomy transfers
    • Replies: 87
    • Forum: General discussion about ALS/MND
  6. scaredwifetx

    hospice- have a few questions

    Steve had clinic on Friday and the doc recommended/convinced, Steve and myself that bringing in hospice now, is a good idea. Of course, she was very careful to explain... that it was a good way to get extra care and support. She also helped him to understand that there are still no clear cut...
  7. scaredwifetx

    questions on progression and trilogy settings

    Hello, I am actually posting questions that Steve is directing me to ask. He is concerned because no one has medically (other than Laurie's help} told him what settings he should have on the Trilogy and if these settings need to change as his breathing capacity is changing. He is now using the...
  8. S

    Medical Equipment

    We have United Healthcare Insurance. January 2nd, I am planning to order whatever medical equipment my PALS needs. What will insurance not cover? I am looking at power wheelchair, eye gaze communication, cough assist, shower chairs, grab bars and whatever else he may need. We are also...
    • soonerwife
    • Thread
    • communication cough assist equipment eye eye gaze help! insurance medical medical equipment planning power power wheelchair shower wheelchair
    • Replies: 26
    • Forum: General discussion about ALS/MND
  9. J

    best lift for toileting

    Need advice on any equipment that will help a caregiver with toileting.
  10. D

    Dangerous loopholes in "aid in dying" laws

    I do not come out on either side of the suicide or physician-assisted suicide issue, but I do staunchly support the right of PALS to be fully informed about their prognosis and treatment options. Indeed, in every debate concerning physician assisted suicide, all sides agree that the patient...
    • Dave K
    • Thread
    • ability assisted suicide cals choking dying end of life equipment family fear financial home care hospice hours ice increase information life pain risk sleep support treatment
    • Replies: 31
    • Forum: General discussion about ALS/MND
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