family

  1. S

    Insurance woes

    Hello,all, I am a non related caregiver for a patient who has completely lost use of all extremities, but retains voice and enough ability to swallow. I am emotionally having difficulty dealing with her family and medical care, although I say nothing while working of course. I am simply sad and...
    • Sueaqq
    • Thread
    • ability advice angry caregiver disability family food frustrated home care insurance medical sad sleep support swallow voice
    • Replies: 13
    • Forum: Current caregivers
  2. T

    Familial ALS?

    Hi all, Thank you so much for taking time to read and respond. I️ really appreciate it and all this forum does. I have a question about familial als. My mother in law passed away from als at 57 after a 6 year battle with bulbar als. At the time it was determined that hers was sporadic. For...
    • Taylorusa
    • Thread
    • als als? bulbar bulbar als dementia early familial familial als family ftd genetic genetic testing kids sporadic testing
    • Replies: 4
    • Forum: Familial ALS (FALS)
  3. A

    coughing constantly

    started yesterday afternoon And causes hours long choking episodes no fever but my family has had bad colds feels like annoying nasal drip but can't cough it up even with cough assist and suction bipap air blowing down my throat is causing more violent episodes don't think it's sickness...
  4. R

    Question Regarding FALS

    Hello, I am new to this forum and my mother in law has been diagnosed with FALS (we do not know what gene yet). She has 6 siblings, 3 of which were diagnosed with ALS in the past in their late 50's to mid 60's. My mother in laws mother is in her 80's and DOES NOT have ALS, she has also...
    • Raquel
    • Thread
    • als? children cure diagnosed diagnosis fals family father genetic heart risk test women worried
    • Replies: 7
    • Forum: Familial ALS (FALS)
  5. A

    Do i require a geneticists consultation?

    My mother and two maternal aunts all the three died of mnd almost at same age of 61 years. Nobody else was earlier diagnosed of the disease. None is afflicted at present as well. Since it has hapened to female members only and i am a mother to two daughters. I am distraught . I feel i have no...
  6. tripete

    Another Mistake...

    Friday I took an hour drive (each way) to Ikea with my family. We were out the whole day. I got home and went right to bed everything hurt and I was exhausted. Since then I have very little strength and I can't get enough air to talk hardly at all. What I can say is weak and with a lot of...
  7. A

    ALS never leaves us

    Hello dear friends. I thought that I would send my warmest wishes to you all on this first day of 2018. I have been absent from this forum as I have been trying to get on with living after Jim lost his battle 10 months ago. I'm so glad that 2017 has finished. It truly was my year from hell. I...
  8. T

    Ground Hog's Day

    Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011. The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...
    • Texans 2014
    • Thread
    • back children eyes family feeding grant heart hours life love night paralyzed peg respite sleep van ventilator work
    • Replies: 8
    • Forum: Current caregivers
  9. P

    Scared 38 y/o Father

    I’m 38, married with 3 young children, and I’m scared to the point of falling apart. I will keep the story as brief as possible. This year has been the most stressful of my life. We almost lost my youngest at the beginning of the year and she was in the hospital for weeks. We had major financial...
    • Poboyross
    • Thread
    • als anxiety back bfs bfs or als? breathing breathing problems children falling family fasciculations father financial go away hypochondria ice life muscles neurologist problems scared sleep story twitches weakness young
    • Replies: 7
    • Forum: Could this be ALS?
  10. David

    ALSA PSA Appearance and Awareness Opportunity

    On behalf of the The ALS Association and Vitamin Enriched, a real people casting company in NYC, we reach out to PALS and CALS for participation in a public service campaign. We are looking for people who are living with mid to advanced stage Amyotrophic Lateral Sclerosis (ALS), and their...
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