family

  1. M

    Living with ALS

    I'm still not sure if I want to be a member of this club...I've been hanging around this site reading the threads and trying to find a reason I shouldn't be here. I'm for sure in denial but I may need advice, friendship so ... just in case I wake up from denial, I thought I'd join. :shock: I am...
    • marianne50
    • Thread
    • advice als arm atrophy clinic cramping denial diagnosed emg family life manual mmn mnd mri muscle muscle twitching neurologist progression stress symptom tests twitching weakness work
    • Replies: 12
    • Forum: New members
  2. S

    “Make-a-wish” organizations for those w ALS?

    Hi! I’m new to this forum - my brother-in-law was diagnosed summer 2017. I’m looking in to organizations which grant wishes to adults with ALS. I’d love to help him and my sister take their family to Disney while it’s still feasible. He can currently still walk but is weakening and has breathing...
    • Shan123
    • Thread
    • als als? breathing breathing issues brother diagnosed family grant ideas love
    • Replies: 4
    • Forum: Off topic everything
  3. Clearwater AL

    Happy Thanksgiving :-)

    Happy Thanksgiving to all. Hopefully it's a day of good food, family, friends, and phone calls for all. Thankful for another day. Don't mean to a Scrooge but I kinda like Thanksgiving a little bit more than Christmas. Again... hope everybody has a warm and pleasant day.
  4. G

    Still in «limbo»

    Dear all great people in here!! I posted here in march for getting advise on my Emg results. I am still in the limbo have had one more Emg since last. This was abnormal and showed spontanious activity but not enough to diagnose. The worries are my symptoms are getting Worse and I am so worn out...
    • GunnyH
    • Thread
    • back cramps diagnose emg family fingers foot fvc heart mnd muscle night problems progression reading symptoms voice worries
    • Replies: 3
    • Forum: Could this be ALS?
  5. WendyWooG

    fals or sporadic?

    hi i have als, limb onset age at start of symptoms 47. when i was diagnosed there was no hint of any family history. Not good but at least i wasn't worried about my kids. today i have had the devastating news that my mum has been diagnosed with bulbar onset at age 75. the doctor has...
    • WendyWooG
    • Thread
    • age als bulbar bulbar onset diagnosed fals family family history genetic kids onset sporadic symptoms tests worried
    • Replies: 5
    • Forum: Familial ALS (FALS)
  6. A

    Am I weird?

    Ok. Short answer......yup, no bout a doubt it. Christmas is my favourite time of year. The lights, decorations, movies, songs..... the list just doesn't stop. I'm not so fond of the cold, but I deal with it. So, here I am, looking forward to holiday get-togethers, seeing friends, visiting...
  7. KatieNBoyd

    Getting through the days

    I was looking back over the posts I had made a year ago. It seems like yesterday but at the same time it feels like forever. Next month will be one year. I am doing better today than I was say about a month ago. Weird things with family and friends continue to happen in particular with Jon’s...
    • KatieNBoyd
    • Thread
    • back brain brother diagnosis family father heart memorial stupid support trip wanted
    • Replies: 8
    • Forum: Past caregivers
  8. F

    So it begins here

    Hello All By way of introduction, I am new to this and have several symptoms that have warranted referral to a neurologist. I live in the UK, am 25, and have no family history of ALS. My symptoms are as follows: 1. Loss of ability to move big toe upwards (right foot); 2. General weakness of...
    • Floppypatient
    • Thread
    • ability als ankle family family history foot introduction neurologist symptoms twitching weakness
    • Replies: 1
    • Forum: Could this be ALS?
  9. H

    Humbly asking for experiential input

    Hello I am mid 40s yo male with a background in the medical field. I would like to ask anyone if their symptoms started like mine and any recourse I would have pending. 4 months ago my legs started be tired and heavy proximal but wide fluctuations. I am a very anxious person and als fears came...
    • Happyseeker
    • Thread
    • acetylcholine als anxiety brain bulbar clean emg clinic dysphagia eating family fasciculations food hope life lyme medical mri muscle night normal emg pls questions speech symptoms testing tongue
    • Replies: 26
    • Forum: Could this be ALS?
  10. chally

    Calender done

    Ok all you stud muffins & cheese cakes, Thank you all for being a part of this silly,fun project! Wish I could have sent ya all more to give to family and friends . You can just call in for more they will send them right to ya. Love you all Chally
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