family

  1. Nikki J

    Contingency planning

    Hard to do sometimes but it is important to plan and very important to have the information somewhere people can find it Backup Plans: Sometimes family caregivers die before their p... : Neurology Now
  2. I

    It's been a year and I'm not celebrating

    "There is no easy way of saying this but your EMG confirms~~You have ALS. I'm sorry." I wouldn't wish these words on my worse enemy. It's been a year since my PALS diagnosis and yet it feels at times as if it were yesterday. In less than a year we have gone from drop foot to using a trilogy...
  3. J

    fALS and Generations

    My 55 yo husband has had neurological symptoms for a couple of years and was just told by a neurologist that ALS is "the front runner" in terms of his diagnosis. His grandmother died 30 years ago at 82 of what they were told was something "ALS-like". She was diagnosed in her late 70s. The...
  4. N

    Maybe just someone to talk to

    I haven’t told anyone what I am going through at the moment. Not even my family. I don’t want to scare them. But I am terrified. I’ve had body wide muscle twitches for a few months but mainly in my legs and my legs would ache easily. In the last week I felt some pain in my neck and noticed I...
  5. Bamba

    Brother with MND moving back to where family are ...

    Hi everyone - I just joined today. Don't even know if I'm posting in the correct forum? Anyway, we're in the UK. My brother was just diagnosed in late April/early May this year with MND. This has progressed really swiftly and he now uses a wheelchair. He's been living at the other end of...
  6. B

    New member intro, glad to be here...

    Hi, I'm Brook. I didn't know where else to post this. I'm not really asking if I have ALS. I am introducing myself and venting my fears to a group of compassionate people. I read all the stickies and apologize in advance if I'm too verbose. First off, I have been lurking on this site for...
  7. L

    Scared new mommy

    Hi all, I just gave birth to my son two and a half months ago, and i have been told i have post partum depression, and i have been a little overly worried about dying lately. However, I feel that i have developed symptoms that point towards ALS and i am very scared. Here are my symptoms...
  8. chally

    Pwc trek into wilderness area

    Took a journey into the Cranberry wilderness area here in WV with two good friends. This place is one of the largest and most remote places on the east of Mississippi River. We went in 7 mi on a gravel road and never saw another person all day. We all said we should have brought all our camping...
  9. S

    FAMIAL als ! Yikes! Help!!

    Hello I am 25 and lost my uncle to als last year he passed away at 50 years of age with als the same with his mother and his grandmother as well all with als. We have just found out it is in our family 100%. I am now worried although i know it mostly strikes at an older age i am having trouble...
  10. D

    EMG on Wednesday - What Should I Expect?

    Hello All, I apologize up front for having to start a new thread as my previous one got locked due to inactivity. For those who followed my initial thread, I've been dealing with a variety of symptoms since at least late March 2017. I am a 41 year old male. As a patient who uses the VA...
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