family

  1. N

    My Dad has progressive bulbar Palsy

    Hi everyone, I wrote a couple of posts back in May after Dad's initial diagnosis but havent wrote anything since. Im having a bad day today so im hoping it might help. As I said my 63 year old Dad was diagnosed with MND in May but its only recently that it has been confirmed that he has...
    • Niamh
    • Thread
    • back bipap breathing brother bulbar bulbar pals dad diagnosed diagnosis eating family food life love mnd morphine night onset pbp pressure speech supplements swallow symptoms travel
    • Replies: 1
    • Forum: Progressive bulbar palsy
  2. Ed340hp

    VigorALS - Tirasemtiv Trial Extension

    I am still upright and survived six weeks of travel with family, and three weeks to get the kids back at school and the check ups at the ALS Clinic. My end of the VitalityALS double blind trial thread was closed, so this will be a new update thread. The last posts were to follow up on the Trial...
    • Ed340hp
    • Thread
    • als arm back balance breathing caffeine clinic communication exercise family fvc kids muscle progression ramp travel trial trip update walker wheelchair
    • Replies: 3
    • Forum: Research and trials
  3. D

    36 and diagnosed with mnd

    Hello, my name is Nathan. I am 36 yrs old with a beautiful wife and 3 wonderful children. From all the research I have done my case seems to really be off the " norm". About 7 yrs ago I noticed that both of my calf muscles were twitching ( now calling them by there real fancy name...
    • Dignify
    • Thread
    • arm atrophy back bfs brain children diagnosed emg family fasciculations gabapentin medicine mnd mri muscles neurologist ohio research shoulder spasms symptoms thumb twitching work worried
    • Replies: 2
    • Forum: Newly diagnosed
  4. Tedstehr

    Excessive hope

    I simply cannot get too upset about my ALS. Could this be a mental problem? 1) People die everyday from hurricanes, accidents and horrible cancers. I am alive today, and I may be alive ten years from now. 2) None of my family have suffered from bad health, mental illness or accidents. I can't...
    • Tedstehr
    • Thread
    • als diagnosis family free health hope life love problem umn work young
    • Replies: 16
    • Forum: Stories of hope
  5. A

    family diagnosed. very scared

    hi everyone. i'm writing this with tears in my eyes and i'm reaching out for support. a family member was just diagnosed. i'm terrified, scared, in denial. i don't understand what is going on and i keep breaking out into sobs as i walk down the street. do you recommend a second opinion? what...
    • anor
    • Thread
    • cell denial diagnosed eyes family family member please help radicava scared second opinion stem cell stem cell therapy support therapy
    • Replies: 7
    • Forum: Newly diagnosed
  6. F

    Video Legacy.

    Hi everyone, I'm working on a short film about people with ALS recording legacy videos with messages for friends and family. I was wondering if anyone would be interested in collaborating. Ideally I would like to feature some clips to show the range of video types people have made. Alternatively...
  7. T

    New to this forum

    I registered-joined this forum today after researching several other sites because I felt that it was genuine and informative. My 57 year old twin brother was recently diagnosed w/ ALS at Duke University. He was told that the degree of certainty is >90%. He had an appt. in Knoxville w/ a...
    • Tlo57
    • Thread
    • 2nd opinion als angry brother cramping diagnosed family fatigue foot life love meds military support swallow tests wanted wrong
    • Replies: 20
    • Forum: General discussion about ALS/MND
  8. D

    Hello, please can someone help me I'm new and I'm scared and confused

    Hello, I just wanted to ask some questions, first I wanna say that I have worked out hard for about four years, I never really ate alot my nutrition wasn't great and I never drank alot of water and I sweat alot, well awhile back I developed a twitch in my left bicep and it was on and off, in May...
    • Dan10
    • Thread
    • als arm back confused cramping early family foot ice muscle muscles nutrition questions reflex scared shoulder stiffness symptoms test twitch twitches twitching wanted
    • Replies: 12
    • Forum: Could this be ALS?
  9. R

    Life update

    Hi everyone, I haven't posted on this forum in over a year now and I've been missing it in my life! My dad was diagnosed with ALS 2 years ago (age 57), and it was around mid-last year that I discovered this forum. It allowed me to connect with people also affected by the disease, who understood...
    • RSV Aus
    • Thread
    • advice age als back breathing dad diagnosed early family feeding food happiness heart hope life reading sleep stages support swallowing transfers trip update wheelchair
    • Replies: 8
    • Forum: Current caregivers
  10. C

    1st Symptoms of Bulbar Pls help :(

    I am a caregiver to a 75 year old woman. I've been caring for her for 5 months now so I'm fairly new BUT she is rapidly deteriorating. When I 1st started she had some problems choking but now I puree all of her food for the last month ... this is the info the family has provided and what I've...
    • Caring for Jean
    • Thread
    • age als als? balance bulbar bulbar als caregiver choking diagnosed family food info mri neurologist pls pneumonia problems speech symptoms therapy tongue voice
    • Replies: 4
    • Forum: Could this be ALS?
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