family

  1. A

    Muscle burning and Tremors for two years before sudden onset of ALS-like symptoms

    Backstory: I am a 20 year old male, with a sudden onset of ALS symptoms, after two years of ALS-unrelated symptoms. I am concerned about juvenile ALS. In June of 2015, I began feeling tightness in my calf and began tripping on carpets. I began experiencing muscle burning when I exercised, and...
    • ariansherian
    • Thread
    • als als symptoms burning emg eyes family family history food foot mri muscle muscle burning myasthenia gravis onset scared swallowing symptom symptoms tests tongue twitching weakness
    • Replies: 20
    • Forum: Could this be ALS?
  2. Kristina1

    enduring well meaning friends, family, and strangers

    I was having a great morning with my husband, when we stopped at the pharmacy to pick up a prescription for my daughter. The pharmacist came all the way out of their area to come over and touch my arm and ask me how I'm doing. She looked like she felt so bad for me. I have never mentioned my...
  3. K

    Worried about my children

    Good afternoon, My father was diagnosed with ALS on October 6, 2017. The critical care neurologist said he was about 16-18 month into the progression of the disease and gave him about 8 months. In retrospect, we feel that he was probably more like 2-3 years into the disease. He passed away...
    • kdavis7
    • Thread
    • age als brother children dementia diagnosed family father neurologist progression reading worried
    • Replies: 5
    • Forum: Familial ALS (FALS)
  4. O

    Genetic Testing

    I've asked this question before but want to see if anyone has new information. When I was going through the diagnostic process, the neuro I was seeing suggested genetic testing through the Athena Lab in the Boston area. (Think this lab has a new name now) The cost was about $35,000, so it was...
    • old dog
    • Thread
    • age als bedridden boston cost dementia diagnosis family family history father genetic genetic testing information pls story symptoms testing voice wanted work
    • Replies: 7
    • Forum: Primary lateral sclerosis
  5. P

    40 year old male'-sudden weird twitching. Really scared

    Soon to be 40 year old male. I eat right and exercise 5 days a week. I walk hills for 40 minutes during my lunch hour then do the steps twice. I also do body weight training. Suddenly started having these twitches all of a sudden Friday at work. It started with my right pectoral muscle. It...
    • pittguy578
    • Thread
    • arm atrophy back bed breakdown early exercise family lift muscle night scared twitches twitching work
    • Replies: 10
    • Forum: Could this be ALS?
  6. A

    New family member

    Hello! My mom, 75, was just diagnosed with ALS. She’s had symptoms since the spring (vocal cord paralysis, difficulty swallowing, difficulty walking) and finally had the nerve conduction test and more EMG/other tests inpatient in a hospital 2 weeks ago, and now has an answer as to why she’s...
    • Albie
    • Thread
    • als caregiver diagnosed emg family family member information newbie paralysis problems swallowing symptoms test tests walker
    • Replies: 2
    • Forum: New members
  7. D

    Left side twitching only(Left arm,leg,knee,calve)

    Godbless everyone on here.I rebuke all ALS in Jesus name by the power of the Holy Spirit and asked God to please pour out healing on everyone dealing with this horrible disease.My heart and prayers go out to everyone on here..... Long story short my grandfather died of ALS when I was 10 and...
    • Dmw1990
    • Thread
    • als arm atrophy bfs emg family family history finger foot healing heart mri muscle pain power scared shoulder story twitches twitching weakness wrist
    • Replies: 1
    • Forum: Could this be ALS?
  8. D

    Does this sound like als?

    Hello age 19, for seven weeks now both my calves have been fasciculating on the inner and outside of my calves to what seems like they are always fasciculating except for when im moving, I also get random twitches in other places in my body like neck, arms, hands, chin feet, etc. but they...
    • Dynamo
    • Thread
    • age als als? atrophy family muscles testing twitches weakness
    • Replies: 7
    • Forum: Could this be ALS?
  9. D

    Anterior Horn Cell Disease

    Hey Everyone, Recently a family member of mine has been diagnosed with Anterior Horn Cell Disease caused by MND. They have been given a prognosis of two years. But I am having trouble trying to find out information about it, and contrary to what I have found on this forum it seems to be...
  10. L

    New here

    My PALS was diagnosed in May with ALS and FTD. Our family I had just been trying to digest the news. We’ve known something was wrong since the beginning of last year. The FTD started first and he didn’t get any physical symptoms until around Christmas when he started choking on liquids every...
    • Lscott71
    • Thread
    • als and ftd atrophy breathing choking christmas diagnosed family ftd muscle muscle weakness neurologist new here slurred speech speech swallowing symptoms weakness wrong
    • Replies: 9
    • Forum: Newly diagnosed
Back
Top