ideas

  1. S

    “Make-a-wish” organizations for those w ALS?

    Hi! I’m new to this forum - my brother-in-law was diagnosed summer 2017. I’m looking in to organizations which grant wishes to adults with ALS. I’d love to help him and my sister take their family to Disney while it’s still feasible. He can currently still walk but is weakening and has breathing...
    • Shan123
    • Thread
    • als als? breathing breathing issues brother diagnosed family grant ideas love
    • Replies: 4
    • Forum: Off topic everything
  2. F

    Mum diseas,strange situation

    Hello all and this is my first post on the forum. Sorry for my unperfect english but i'm italian... :-) Let me introduce my questions... 4 years ago my mum started to have some problems with left leg and especially in walking. She put her foot in a strange way,like if she hasn't the control...
    • Foxmark
    • Thread
    • als back confused cramps emg eye fasciculation foot helpful ideas motor neuron disease muscles neurologist pain problems questions shoulder story support
    • Replies: 3
    • Forum: Could this be ALS?
  3. C

    Altering Pants?

    Hello, I'm in my power chair full time and have read about altering the crotch/backside of pants to make toileting easier. Before I start cutting away on my clothes (I'm having a hard time with this one...) I think I will start with some yoga or sweat pants. Any suggestions or ideas to...
  4. R

    Neuro Today. Asymmetric Knee Reflex.

    I'm a 25 year old male. I've been having fasciculations all over my body daily for a little over three months now. (literally everywhere from head to two, including inside my ears etc) I saw a neuro today. He didn't seem concerned about the twitches overall due to their widespread and fairly...
    • running1203
    • Thread
    • als fasciculations heart ideas mri pressure problem reflex twitches wanted
    • Replies: 8
    • Forum: Could this be ALS?
  5. C

    Tobii Eye Tracker question.

    Hi. My mother has ALS. I would guess that within the next year she will completely lose dexterity in her hand/fingers. I am a software developer that recently purchased a Tobii Eye Tracker 4C device and am currently building an extensible application that would allow a user to control an...
  6. S

    Tips and Tools for in home helpers

    I am looking for some ideas for binders or any tools that I can use to organize for the aid, nurses, and volunteers that will be coming into my home to help out. I am typically a very organized person but for some reason, I can't figure out what will work the best. A folder for each group...
  7. S

    dry skin

    I have started to expierince extremely dry skin from flakes to patches coming off on my whole body. Have tried lotion and soaking. Anyone have any ideas
  8. Erika

    bed remote control

    My mom isn't able to push t he Buttons for her hospital bed remote control. She can't sit up or lay her bed down. We help her during the day and have looked at some alarm systems, so that we can help her during the night. But she says she is afraid her saliva will get pooled in her throat and...
  9. Tedstehr

    Tin foil hats

    A few years ago I was using some bug spray that had a warning label that said "May cause ALS." I used it anyway, and even breathed a little extra in because it had an oddly appealing smell. And when I worked as a diesel mechanic 30 years ago we used to sit around and discuss how long we could...
  10. J

    Any advice/Looking for someone

    Looking for a lady named lisa that's been diagnosed. Her als presented with arm pain and then weakness and atrophy of the shoulder. I've searched and searched I can't remember her user name.. thanks for anyone that knows..
    • Jdeaton0w
    • Thread
    • advice als arm atrophy back breathing diagnosed diagnosis emg flu foot ice ideas insurance lyme mri muscles neurologist pain shoulder swallowing test trouble swallowing twitches voice weakness worried
    • Replies: 7
    • Forum: Could this be ALS?
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