ideas

  1. B

    swallowing rilutek with difficulty

    hello all. i have limb onset, can still eat most things, do not want a PEG yet because I am plump and not losing weight. but i cannot swallow pills. so my caregiver grinds up my neudexta and gives it to me with applesauce and that is fine. but if we try the same thing with rilutek, it makes my...
  2. G

    Advice

    Hi, I first noticed symptoms in early 2016. Finally diagnosed in Jan 2017. Progression seems to be right on schedule. Walking is getting more difficult and I've advanced to a cane. Along with staying active as much as possible I've had physical therapy and used Nautilus. It seems perhaps the...
  3. P

    New member

    I currently have a probable diagnosis if I understand it all correctly that's the second highest level of diagnosis. My doctors first found my diaphragm to be partially paralyzed in Dec 16 suspecting an injury from a car wreck some years back. After seeing a number of doctors I was sent to a...
  4. jonico

    Lift chair and hospital bed at hotel/resort

    Hi, Has anyone had experience getting a lift chair and/or hospital bed to use in a hotel in the US? We are traveling to NJ in a couple weeks and plan to bring our own if necessary. But I wonder if there is a way to rent them and and have them delivered to a hotel. Any ideas appreciated...Jon
  5. bkite

    The Mensa Convention

    There was a Mensa convention in San Francisco. Mensa, as you probably know, is a national organization for people who have an IQ of 140 or higher. Several of the Mensa members went out for lunch at a local café. When they sat down, one of them discovered that their salt shaker contained...
  6. Kristina1

    biting myself

    I feel like my problems so far in this disease are so tiny compared to those of many here, and I appreciate everyone's patience in listening or advising me. That said.. latest problem.. My cheeks close to my lips on the inside of my mouth droop a bit due to loss of muscle. So they get in the...
  7. B

    Give a LIFT for ALS Idea

    Hello all, Something I wanted to share that was developed by a charity in Canada: 'Give a LIFT for ALS' was recently selected as the winner of a global creative competition trying to come up with original ideas that could build on the extraordinary success of the Ice Bucket Challenge...
  8. bkite

    Paraprosdokians

    First time I heard about paraprosdokians, I liked them. Paraprosdokians are figures of speech in which the latter part of a sentence or phrase is surprising or unexpected and is frequently humorous. (Winston Churchill loved them). 1. Where there's a will, I want to be in it. 2. The last thing...
  9. M

    Tobi

    Hi everyone, My dad went to the speech therapist yesterday (mom called and got an appt before als clinic) b/c his speech is getting worse day by day. IT BREAKS MY HEART!!! My mom told me that she told the lady that she's glad she called to get him an appt since it will take 6 weeks before the...
  10. T

    Worried :(

    Hi everyone, I am new to this forum. Appreciate any insight you can provide. I am a 39 year old male in good shape. For the past 6 weeks, I have had a weird feeling in both knees that is constant. It isn't pain. Just feels like my knees are sore and weak. "Tired Knees" if that is a medical...
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