information

  1. tripete

    To all who are questioning Do I have ALS

    There is a ton of information on this site that you can access to try and get answers. And while posting questions is allowed, until you are diagnosed it becomes a burden upon those who are caring for people with ALS and it is something that most of us with ALS do not want to deal with. We all...
    • tripete
    • Thread
    • advocate als diagnosed do i have als information questions work
    • Replies: 10
    • Forum: Could this be ALS?
  2. J

    Worried about my symptoms

    Hi There everyone, My names Jason, i Live in Malasysia, i came across this forum in a google search and really admire what all of you are doing to help each other and people like me who need information. Please excuse my English if there's any mistakes as its not my first language. I have...
    • jdeszolu
    • Thread
    • advice als atrophy back brain emg finger foot health information lift mri muscle pain problem ring finger symptom symptoms test twitching weakness worried wrist wrong
    • Replies: 4
    • Forum: Could this be ALS?
  3. S

    Scared 19 year old

    Hi guys, I'm here to seek information over if I should be concerned, as I am heavily scared right now. A month ago the muscle beneath my eye started twitching, this would be continously and lasted for two weeks. I can still see those muscle fibers twitching if I squint my eye. Now I have a...
  4. K

    A thank you to the moderatorsl

    Since I first posted on this site I have had so much helpful and useful information. I thank all of the moderators for all of your patience understanding blunt but true words and suggestions. My last postings were about my frustration with the care I was receiving. I asked the very questions...
    • Kerbear
    • Thread
    • als biopsy clinic emg family frustrated helpful hours information lead life muscle muscle biopsy questions
    • Replies: 1
    • Forum: Newly diagnosed
  5. ShiftKicker

    Clinic Update

    Just sticking my clinic update here for those who have questions about pure UMN MND/PLS. This section of the forum has been relatively quiet these past few weeks, but perhaps this will prove a useful reference to someone. I had my ALS clinic check up yesterday. I had a list of things to discuss...
    • ShiftKicker
    • Thread
    • als breathing clinic clinical dihals emg fatigue hope information life mnd motor neuron disease night onset pls questions sleep stress symptoms test tests treatment umn update wanted
    • Replies: 42
    • Forum: Primary lateral sclerosis
  6. David

    Loved one or friend passed away? Please submit their eulogy

    We would like to remember members of the forum in proper fashion by having loved ones, or friends, post a photo and details of the individual being remembered on our Memorial Wall. If permissions is required, or a photo can't be found; let me know and I'll reach out to the contact information...
    • David
    • Thread
    • family information memorial
    • Replies: 15
    • Forum: In memory of
  7. G

    DynaVox Vmax with EyeMax $750/OBO

    HI friends ~ I'm a Quality Life Coach with one of NY states largest agencies supporting those with developmental and physical disabilities. Recently a gentleman whom I have been coaching who has CP received some regional media attention regarding his pursuit of a lifelong dream ~ which...
    • GSPEARS
    • Thread
    • age dynavox dynavox eyemax dynavox vmax equipment eyemax information life love media story vmax
    • Replies: 0
    • Forum: Used ALS equipment for sale
  8. K

    Kat's mom

    Hi friends, I've been MIA for a long time, but my mom was relatively stable. A slow and steady decline, but nothing that limited her abilities much beyond where we were in the fall. But suddenly there were some noticeable changes in the last few weeks, culminating in a huge change today. I...
    • KatBee
    • Thread
    • age bed decline dying eyes home care hope information planning speech treatment wanted
    • Replies: 20
    • Forum: In memory of
  9. Chumpy

    Nuedexta info please

    Any information on this would be great! PAL has Bulbar ALS, but not the laughing and crying. We've heard good things on the bulbar side, but concerns on side effects! Please share your experience with this medicine! Speech is almost gone, swallowing barely, FVC 40% so diaphragm is getting...
  10. F

    Revised Diagnosis

    Good morning, all! Aside from a quick "Happy Birthday" message to Max a few months ago, the last post I recall is from when I received my "working diagnosis" of PLS in March of 2015. I have had continued follow-up with the Director of our local ALSA Clinic, including a repeat EMG in December...
    • FrJn
    • Thread
    • alsa clinic diagnosis emg information newbie pls progression questions second opinion umn
    • Replies: 6
    • Forum: Newly diagnosed
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