information

  1. B

    newly diagnosed, a few months after spinal cord surgery

    Hello all and thanks for being there. I was diagnosed two days ago. My particular mystery is that i had the beginnings of ALS symptoms concurrently with an ependymoma tumor in my lumbar spinal cord and also crooked neck bones and a herniated disk in my neck. I am 59. Neurologists had a hard time...
    • BetsyB
    • Thread
    • advice als als symptoms arm back balance brain diagnosed diagnosis fasciculations free immediately information medicine mri neurology newly diagnosed problems research support surgery symptoms transfer treatment weakness
    • Replies: 12
    • Forum: Newly diagnosed
  2. M

    A Question

    Hi I am caring for my mother who was diagnosed with PBP in September last year. She has been doing pretty well and still runs around as much as she can cooking and living life as normally as possible. Her speech has continued to deteriorate however and in the last couple of days, she has...
  3. Nuts

    TMI on FB?

    My sweetheart was always very private about his health issues before ALS. This has changed completely, and he is now VERY open about things such as potty problems... He has been very quiet about the downside of ALS for the past two years on his FB page, but friends have asked for updates and...
    • Nuts
    • Thread
    • advice advocate als health heart information kids problems support
    • Replies: 3
    • Forum: Off topic everything
  4. D

    Hallucinations

    I have just joined this forum. My uncle was diagnosed with ALS 5 yrs ago. Last week he started having hallucinations I have not been able to find any information on hallucinations with ALS. Is this a norm?
  5. G

    Please help with insurance/ medicare benefits information

    A dear friend of mind has recently been diagnosed with ALS. She will have surgery next Friday as she needs help with breathing and will be placed on a ventilator. She just received word that she was approved for SSDI and Medicare. Medicaid was denied. Her husband has insurance (BCBS) through his...
    • greeneyes507
    • Thread
    • als breathing diagnosed family friend health helpful home health care information insurance medicare please help ssdi surgery ventilator
    • Replies: 8
    • Forum: Newly diagnosed
  6. M

    New MDA/ALS Clinic

    Hello Everyone! A little good news for people in Northeast Oklahoma! I am still a young pup when it come motor neuron disease and their types but I am learning fast, thanks mainly to this forum so far. I am a veteran and the my therapist at the VA sent out an all call to all the social...
  7. Margesmn

    New and looking for connections

    Hello all, My name is Margaret and I was diagnosed in November 2015-onset in right foot. After reading some posts, I feel blessed I received my diagnosis so quickly. (First Dr. Visit was July 2015.) I have read a number of posts and appreciate all of the information, suggestions and support I...
    • Margesmn
    • Thread
    • book diagnosed diagnosis eating family foot helpful information newly diagnosed onset reading shower shower chair support walker wheelchair
    • Replies: 16
    • Forum: Newly diagnosed
  8. J

    Just beginning our ALS journey

    Hi, my brother was officially diagnosed with ALS on December 29, 2015. It rocked our world. He is 45 years old, a single dad with two young children. He will begin the ALS clinic the first week of April. I personally look forward to that as any direction and guidance is greatly appreciated. This...
    • Jlynn
    • Thread
    • als brother children clinic dad diagnosed information website young
    • Replies: 9
    • Forum: Newly diagnosed
  9. F

    ALS and living alone-concerned

    Hi everyone, I had the contractor come out to give me a bid on remodeling my bathroom to make it wheelchair accessible. Not surprisingly, it is very costly. I live alone and am processing all my options. I've lived in my house for 21 years and would really like to stay here. Right now, I'm...
    • Firefly
    • Thread
    • als assisted living bulbar caregiver cold home care information life medicare nursing home nursing homes relative ssdi support weakness wheelchair
    • Replies: 12
    • Forum: General discussion about ALS/MND
  10. M

    New Here - Just some Comments

    Hi, I initially thought I wanted to come on here and get some reassurance, I read the sticky, and thought, well I certainly don't belong here. My symptoms are only 7 weeks old, involve twitching in both calves and elsewhere in the body left calf tightness that is worsening with time. I was...
    • Mocha1
    • Thread
    • als anxiety diagnosis health helpful hope information life new here symptoms twitching wanted
    • Replies: 3
    • Forum: Could this be ALS?
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