information

  1. J

    Difference between a doctors appointment and a clinic appointment

    Hi, I'm hoping someone can tell me the difference between a clinic visit, where my dad will see all of the related service providers, and an appointment with his neurologist. My mom said that the clinic appointment will be a three hour appointment where he'll meet with the swk, speech...
    • Jenn1204
    • Thread
    • als clinic dad denial help! information neurologist planning speech
    • Replies: 3
    • Forum: Current caregivers
  2. A

    Travel

    We are trying to find a vacation spot that is not only handicap accessible but has a toilet with a built in bidet/washlet. At this point the person we are accommodating refuses to allow anyone to help him with this task and it allows him some privacy and dignity. We are looking for a resort or...
  3. R

    Medicare Homecare Provisions - Change.org Petition

    For your information and consideration -- https://www.change.org/p/tell-als-association-improve-home-care-for-als-patients?recruiter=10288373&utm_source=share_petition&utm_medium=facebook&utm_campaign=autopublish&utm_term=mob-md-no_src-no_msg&fb_ref=Default I'm not familiar with all the rules...
  4. A

    Am I over thinking?

    Hello everyone, So long story short, I am Zach, 23 and very physically active. I have had random twitches all over my body since 2011, and they have never concerned me. However, for the past 3 weeks I have had a twitch on the bottom of my thumb pad that sometimes moves my thumb. This twitch...
    • aquaZachary
    • Thread
    • free information pain running story tests thumb twitches twitching weakness worries wrist
    • Replies: 7
    • Forum: Could this be ALS?
  5. K

    At a stand still...

    All of you are very smart and I am not sure how I should approach my neuromuscular doctor. We are very disappointed in the clinic we are using. The first major problem happened in November after a clinic visit in October there was talk of a muscle biopsy the nurse called me and asked me to come...
    • Kerbear
    • Thread
    • als back baclofen biopsy breathing clinic confusing cure diagnosis emg eye information mnd mri muscle muscle biopsy muscle wasting physical therapy pls problem sad speech swallowing test tests therapy treatment
    • Replies: 10
    • Forum: General discussion about ALS/MND
  6. N

    My inital problems and their change over time

    Hi everyone, I am new to here. I find it is a very supportive community here. I have been reading the posts seeking for help since my problems started. This is my first post. I am a 33 male. From October 2015, I started gym exercises. Before that, I ran about 2-3 times a week and 4-5km each...
    • nathan1
    • Thread
    • abdomen ankle back early early problems emg fingers foot hope information lead mnd mnd/als muscle muscles neurologist pain problems questions ring finger running shaking shortness of breath sleep stiffness symptoms tests twitches weakness wrong
    • Replies: 2
    • Forum: Could this be ALS?
  7. Grace89

    Prescription Savings

    Just sharing.. I downloaded the app and I'm going to pick up my meds today. My Neurontin was running me $90 a month and this app says $11.47. I have prepaid on the app and I'm to show the digital card to the pharmacy and have them use this information instead of my medical insurance. I also...
  8. sleepy

    Q for PALS and CALS - sharing information

    Hi folks - appreciate your thoughts or experiences on how you managed this... we can't be the first ones feeling this... PALS notices something - legs "feel weird" or a close call that wasn't a fall. PALS tells CALS. Gotta share the information right? This is what's going on. CALS hits the...
  9. P

    FALS Genes

    Hi, I belong to a FALS family that has lost 13 members to ALS, including my father at the age of 55 and his brother at the age of 48. They had several aunts, uncles and cousins pass from ALS as well. I still can't believe this, but unfortunately none of them were tested for defective genes. My...
  10. B

    Hi I am bja723

    I was just diagnosed yesterday with 98% sure ALS. I am scared but I want to be brave as I am 65 years young with a wonderful husband and great family. I believe my symptoms started nearly 2 years ago in the Summer of 2014! I began with left foot drop left leg weakness and I already had...
    • bja723
    • Thread
    • als back diagnosed early emg falling family foot foot drop helpful hope information scared support symptoms weakness young
    • Replies: 9
    • Forum: Newly diagnosed
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