I feel bad ranting a bit here, but will anyway:).
My primary wheelchair, the Permobil C500s VS, had extensive work in December of 2017 (over $11,000). That was covered by insurance, but I had to pay a substantial deductible/copay.
At that time, they were supposed to replace the motors...
So heres my current situation. A year and a half ago I started twitching widespread. Like a lot of people on here i turned to dr. Google and flipped. I saw a bunch of neurologists and the head als specialist at cleveland clinic eric pioro and kept pushing for an emg. Eventually i had a clean emg...
Hi all,
We are going to be getting a hospital bed soon. I am thinking about a lateral rotation air mattress. My husband doesn't have much use of his arms. I realize that Medicare or insurance probably won't pay.
I have a medical condition that requires me to sleep through the night. We...
Hi,
I am 19 years old, I do have health anxiety, and I have been pretty stressed for the past 3 months. The problem is, about 4 weeks ago, I started twitching in my right shoulder, it came out of nowhere while using the computer. Lasted for a few minutes and vas visible, not in a pattern...
als
anxiety
arm
atrophy
ball
caffeine
diagnosed
driving
emg
friend
health
holiday
ideas
insurance
lift
movement
problem
shoulder
sleep
twitches
twitching
vacation
weakness
work
worried
Really worried about potential ALS symptoms. I do deal with a lot of anxiety and obviously getting on google never really seems to help. Going to try and lay down a time line of how things have progressed over the past few months:
Jan 2017- was having trouble with food getting caught in throat...
Hi All. Very new to all this. Symptoms started about 7 months ago. After 4 Dr.s and 3 states they confirmed what I suspected from the beginning. ALS. Got to say it's harder on the people around me than it is me.
Got a few questions.
1. What legal forms do I need to prepare while I still can...
Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment.
Thankfully -we have great medical insurance at this time- so finances aren't the...
ISO some medicare help here. My husband is newly diagnosed and being seen at the John Hopkins Clinic. At our appointment last week, it was suggested we go ahead and get the medicare paperwork in and started. My husband is very early stages and only has some weakening in his hands and arms...
It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...
breathing
caregivers
cough assist
cure
death
depressed
disability
feeding
feeding tube
food
hope
insurance
kids
life
love
money
muscles
night
paralyzed
research
sleep
treatments
ventilator
work
wrong
Hello all,
I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...
2nd opinion
advice
age
atrophy
back
brain
denial
diagnosis
emg
falling
foot
foot drop
grief
hip
insurance
lead
life
lyme
mnd
muscle
research
stress
symptoms
weakness
wes