lung capacity

  1. E

    I hate this

    I hesitate writing this post but I need to get it out, it's eating me up inside. Tom had his ALS clinic appointment Thursday, his breathing tests were so low. Lung capacity 20%, FVC 21%, aspiration was the highest at 29%. Last visit five months ago all were in the 40s and 50's. And before...
  2. lgelb

    RIP, dear Larry

    Larry left us peacefully this morning, after five years of ALS and a lifetime with Marfan syndrome. His brain, spinal cord and other tissue have been donated to ALS research via the National Rare Disease Interchange (NDRI), which procures donations across the US. Larry talked, ate and responded...
    • lgelb
    • Thread
    • als als research bipap book brain caregiver donations eyes friend hospice life lung capacity medical morphine research work
    • Replies: 27
    • Forum: In memory of
  3. S

    New Member / Awaiting Diagnosis / MIP Questions

    Let me begin by saying how much I respect and empathize with this horrible battle that each of you are going through. None of you deserves it, and I know there is little I can say that will help, but my heart is with each of you, for whatever it is worth. I have not been diagnosed, but it is...
    • ScottW
    • Thread
    • als anger angry anxiety bipap bulbar confused diagnosis emg frustrated fvc idiot information insomnia lung capacity medical mistake muscles neurologist neuromuscular disorder new member normal emg oxygen problem reading research sad support symptoms tests wanted weakness work wrong
    • Replies: 25
    • Forum: Could this be ALS?
  4. M

    face mask for non invasive ventilatiom

    Hi, My husband uses the Trilogy as non invasive ventilation ( not bipap). It has made a huge difference by helping to increase lung capacity. However, because the volume of air has drastically increased, he is having trouble with the seal on the mask. Air is escaping,:confused: which lessens the...
  5. M

    ALS with Paraneoplastic LEMS?

    My father was recently diagnosed with ALS at 71. His symptoms started one year ago with left drop foot followed by overall declining strength and weight loss (70lbs over the past 12 months). Originally we thought it was a pinched nerves in his spine, then a Statin myopathy. He was hospitalized 6...
    • mattb
    • Thread
    • als arm breathing bulbar clinic clinical dad diagnosed diagnosis father food foot ivig lambert eaton lung capacity mnd neurologist pain peg phlegm reading research shortness of breath slurred speech speech swallowing symptoms taste tests therapy voice weight loss
    • Replies: 5
    • Forum: General discussion about ALS/MND
  6. 1

    So many questions!

    My husband was diagnosed with primary progressive aphasia on 6/28 after I began noticing first a change in the tone of his voice and the slurred speech and it seemed difficulty finding the words. We saw a local neurologist and received this diagnosis then to UPMC Pittsburgh where he was...
    • 1Debbie
    • Thread
    • als aphasia bulbar bulbar onset coconut oil confused crying dementia diagnosed diagnosis exercise heart lung capacity muscle twitching muscles neurologist oil onset possible als pseudobulbar rilutek sad slurred speech speech speech therapy story swallowing symptoms therapy trouble swallowing twitching voice
    • Replies: 6
    • Forum: Progressive bulbar palsy
  7. N

    Worrisome symptoms

    Good evening everyone, I am new to the site and would just like to start off by saying how much I admire everyone who is in some way affected by ALS. I am a 22 year old male who has always led a very active lifestyle whether...
    • Neverblinktwice
    • Thread
    • als anxiety back ball brain breathing drugs family fasciculations fatigue idiot lump lung capacity mri neurologist problems quality of life reading saliva slurred speech speech symptom symptoms test wanted weakness worries wrong
    • Replies: 4
    • Forum: Could this be ALS?
  8. A

    Ventilator Decisions

    Hi, I hope all of you out there are doing well! I have a couple of questions. The time has come that his lung capacity has gone down to the point that they are recommending he get put on a ventilator. I fist want to ask if there are any words I can say to him that have helped all of you in...
  9. G

    Odd Question on Mouth/Lung Issue?

    Hi, all-- As I posted here a few weeks ago, my mother, age 72, has language-variant frontotemporal dementia and also suspected ALS (getting evaluated in early February). She has increasing trouble swallowing, and before her speech all-but-completely disappeared she was slurring and her speech...
  10. S

    Questions

    My mother inlaw just received her Bipap and is refusing to get used to it. She keeps saying that it won't be long till she's going to pass on and feels that she doesn't want to use another equipment. Her onset problem of drop foot began in May 2010. She was diagnosed Aug 2012. She is walking...
    • slicknscoot
    • Thread
    • als bed bedridden bipap cough assist diagnosed dynavox early equipment foot lung capacity onset peg problem questions stages suction ventilator walker
    • Replies: 13
    • Forum: General discussion about ALS/MND
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