lung capacity

  1. T

    Trilogy 100 Vent Tray and transport

    My father now at 35% vital lung capacity will have a Trilogy 100 Vent tray attached to his wheelchair this week. He has a lot of anxiety about not being able to maneuver his wheelchair within the ramp van with this extended piece of equipment and the attendant control on the back ofo the...
  2. L

    Musician with ALS seeks Presidency

    Despite his disability of being wheelchair-bound with ALS, Lee has managed to create music using a unique, painstaking method. Utilizing a computer and music notation software he is able to compose using one finger and a touch pad. Lee is no longer able to sing because of diminished lung...
    • LeeAbramson
    • Thread
    • als artist back diagnosed disability finger hope life lung capacity mobility music psychology software story technology voice walker wheelchair
    • Replies: 0
    • Forum: Stories of hope
  3. D

    Doctors Out Of Touch!

    Dean has finally decided to get the Peg. That news was several weeks ago. We met with the gastro doc and he explained the procedure then I explained that Dean has ALS and extra precaution was needed when they gave him the twilight etc. because of the swallowing/choking issues. He response...
    • DeansWife
    • Thread
    • als back choking fear lung capacity medical neurologist peg problems questions surgery swallowing test treatments venting wanted
    • Replies: 28
    • Forum: Current caregivers
  4. K

    Weakening Chest Muscles

    How do you tell when your chest muscles are starting to weaken? For example, you can test your arms and legs by trying to lift them up...but is weakness in the chest measured by pressure on the chest, or perhaps difficultly taking in a breath, reduced lung capacity? I have noticed the last...
  5. V

    ALS, pulmonary embolism and a two heart attacks?

    My mother is only 51, was an avid walker and a generally healthy person until she turned 50. She began with coldness in her fingers which was diagnosed as Reynaud's disorder, no big deal. Then she began to feel fatigue, trouble swallowing, trouble moving parts of her hands, thickening of the...
    • valoree
    • Thread
    • als als symptoms biopsy cold cramping diagnosed diagnosis driving emg family family history fatigue fingers heart hospice hours immune lung capacity muscle muscle biopsy neurologist pain problems progression questions reading risk scleroderma steroids swallowing symptoms tests treatments trouble swallowing twitching ultrasound walker
    • Replies: 15
    • Forum: Could this be ALS?
  6. SixthKid

    NeuRx DPS

    My Dad is going to Brigham & Womens today to be tested for the NeuRx Diaphragm Pacing System. I read the previous thread regarding this (it's now locked) and although I am thankful for all the research that is out there being done, whether it is for ALS or cancer, etc. I just have my doubts if...
    • SixthKid
    • Thread
    • als breathing dad diaphragm dps feeding feeding tube lung capacity research work
    • Replies: 12
    • Forum: Research and trials
  7. Atsugi

    My Lungs Are Burning

    PALS on home hospice crisis care 24/7, rapidly declining. She's been a family practice physician for 22 years. Diagnosed by EMG/NCV 8 months ago. Now quad paralyzed, very little capacity to chew or swallow. Speech unintelligible due to low lung capacity and reduced ability to form words. Just...
    • Atsugi
    • Thread
    • ability breathing burning caregiver emg family headache hospice lung capacity morphine paralyzed swallow
    • Replies: 8
    • Forum: People with ALS (PALS)
  8. L

    Appointment last week

    Diagnosed in June 2011. I had 3 appointments at the University last week. First one was for physical therapy, second one was to meet with a nurse to get more educated on PLS, and the third was a pulmonary function test. The PT thinks that it would be a good idea to get a walking stick to use...
    • LouLou
    • Thread
    • baclofen balance diagnosed exercise falling foot foot drop lung capacity mad physical therapy pls pulmonary function test sad test therapy
    • Replies: 6
    • Forum: Primary lateral sclerosis
  9. G

    Newbie

    My grandmother was just diagnosed with ALS two weeks ago. She's in her early 70s. Just before I left on a trip during the last week of April, her only sibling called and said he was in the hospital. He died only a few days later. They were never really close, but I think that the stress and...
    • GoodApple
    • Thread
    • advocate age allergies als back decline diagnosed early early symptoms eating family feeding feeding tube health hope lung capacity metabolism newbie night possible a questions stress swallowing symptoms symptoms of als test trip
    • Replies: 3
    • Forum: Current caregivers
  10. shelleynshaggy

    Our Latest Clinic Visit

    On Wednesday Jim had his 3rd ALS Clinic appointment. The day started out with a commute of over two and a half hours to get to the Cleveland Clinic (which is about 25 miles away.) After being over an hour late his first stop was occupational and physical therapy. Interestingly enough despite...
    • shelleynshaggy
    • Thread
    • ability als arm back biopsy breathing christmas clinic dad dementia early eating ftd health hours increase kids life lifts lung capacity mri neurologist nih pennsylvania physical therapy pressure problem pulmonary function test reflex research stem cells support swallow symptom test testing tests therapy vacation wanted
    • Replies: 0
    • Forum: Current caregivers
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