I was curious to know at what percentage of lung capacity..people have been recommended to go on a vent? My hubby is at 52% lung capacity when he is measured at the ALS center. He has stayed consistent for 6 months..thank goodness. So worried every time we go to the center that we will see a...
I help care for my mother at times and she cries much complaining that she is in so much pain. She is at the point now where she has no control over any appendage below her neck. She has 40% lung capacity left and has now started experiencing problems swallowing. She will begin taking morphine...
i went to clinic yesterday and came away depressed. they want to install peg and trach asap. i wasn't ready to hear that. i still walk short distances. i eat & swallow fine and still weigh over 180lbs and still look healthy. they want to put them in now because my fvc has dropped to 42%...
Let me start by saying I have been reading here for a week or so and finally decided to post. My husband is 51. A few years ago he had pneumonia really bad, and a year later had it again. The pulmonologist pointed out to him recently that it is not normal to have pneumonia even once, let...
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Don's clinic visit was the best so far. We had our questions answered and was in/out of there in less than 2 hours :-) Don's legs are still strong, his weight has stayed the same over the last 3 months (115 lbs.) and his lung capacity has risen from 56% to 67% He did tell me that he tried...
Hi All,
Firstly, thanks again to all of you for your wise advice. You have all helped me tremendously
and I really appreciate it.
It has been a month now since my father's diagnosed and we are all coping a lot better now. For the first 2 weeks solid, I could barely keep it together. Now we...
I have posted very little since my mom's diagnosis in January '08. She has had such a fast decline, and I have been needed a lot with helping out my dad, so the computer is last in my life. I was hoping someone can help give me a prognosis on our situation or maybe a glimmer of hope.
My mom...
I went to my ALS clinic yesterday. It was my 1 year anniversary of going to the clinic. My RT said my cough ability had risen and my inhale capacity had doubled. My lung capacity was about the same.
I talked to the Neuro about taking Lipitor and he first said that a statin like Lipitor was...
I've been noticing that often when I am speaking with someone I will need to stop mid-sentence to take a breath before finishing. Is this a sign of diminishing lung capacity and is this common with PALS?
Hi,
I am confused on how to read the numbers my mom recently received from the pulmonologist. I thought maybe someone else could help me to understand what the levels mean.
Her latest tests show that her vital lung capacity has dropped from 1700ml to 750 ml since her last visit. It seems to...